Discussion Forums > Thalassemia Major

Question: H1N1 vaccination a "must" for thal.major patients ??

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flyaway:
Hello to everyone,
This is the first time I'm entering this site. I read through some of the topics, and I think it's great that such a site exists.
I've a question:
I'm kind of lost, my doctors are driving me crazy about this flu vaccination. They told me that as a thal.major patient I belong to the high-risk group and should be vaccinated. But I'm so scared, I got my seasonal flu-vaccination beginning of December and reacted with fever, throw-ache, joint pain, redness, swelling and got a haematoma at the vaccination site (this because I'm blood-diluted). Was sick for 1 week, taking paracetamol.
I'm from Switzerland and it seems that the doctors here are extremly scared about this flu: regarding thal.major patients. I think it's because they don't see too many thal. patients and do not have a lot of experiences...
I'm wondering how many of you guys with thal.major have been vaccinated.
Thanks for letting me know what you think would be the best to do.
Best wishes to all of you, flyaway

Canadian_Family:
Thal major indeed are in high risk group. It is best to get the H1N1 shot, just in case. Since, thal major do not produce enough hemoglobin, their immunity is compromised.

Waleed:

--- Quote from: flyaway on December 12, 2009, 10:16:31 AM ---Hello to everyone,
This is the first time I'm entering this site. I read through some of the topics, and I think it's great that such a site exists.
I've a question:
I'm kind of lost, my doctors are driving me crazy about this flu vaccination. They told me that as a thal.major patient I belong to the high-risk group and should be vaccinated. But I'm so scared, I got my seasonal flu-vaccination beginning of December and reacted with fever, throw-ache, joint pain, redness, swelling and got a haematoma at the vaccination site (this because I'm blood-diluted). Was sick for 1 week, taking paracetamol.
I'm from Switzerland and it seems that the doctors here are extremly scared about this flu: regarding thal.major patients. I think it's because they don't see too many thal. patients and do not have a lot of experiences...
I'm wondering how many of you guys with thal.major have been vaccinated.
Thanks for letting me know what you think would be the best to do.
Best wishes to all of you, flyaway


--- End quote ---

welcome to the forum Fly away .... Hope u'll b active member of our family ... as for vaccine not only thal.maj but everyone shud get vaccinated ... apart from the fact that i really dont bother about it  :rotfl (waleed has a crazy man syndrome please dont try this at home) ...

Lena:
Hi flyaway,

I am a thal major and I am not vaccinated. I have only proceeded to the seasonal flu vaccination along with the silicosis vaccination ( I hope the medical term I am using is correct). Two friends of mine, thal majors as well, got the flu and were very mildly sick with sore throat and a fever of 37.5 degrees centigrade. In Greece it is up to everyone to get the vaccine or not. Even doctors do not press people, the majority of them are negative. I think they have scared us all as to this H1N1.
It is imperative - doctors' opinion - only if you suffer from lung and  respiratory problems or diabetes.

Lena.

Manal:
Also people who are allergic to eggs should not take this vaccine at all.

As for my opinion, my son is not supposed to take any live vaccines and i have t check this first.

Second i don't feel comfortabe giving vaccines with squaline or thimerosal anymore.

manal

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