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Transfusion Independence

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Dori:
Hmmmm, I thought that JW never want to have blood transfusions. So this sound odd to me. The level of 5.5 makes me smile because thats the level I usually get transfused but then we talk in mmol/l :)

The other thing is not related to this topic. It is just that I dont dare to guess anymore what my hgb can be. I lost any feeling in refer to that. I feel pathetic. No feeling at all. The same for my ferritin.

I absolutely believe that chelation should be start the minute newborns get transfused.

5.5 gl/dl is 3.4 mmol/l. It might nog kill you immediately, but in the long term it is not good. Ironjustice, how do you feel by a hgb of 3.4? I would feel like a fish outside water! In the long term you will developed complications like skeletical changes and poor bones. (I would be very very cold and depressed too!)

ironjustice:
Quote: Can we get some research going in the area of developing early use chelators based on natural antioxidant chelators like IP6 and green tea extract?

Answer: One might think this would be EASILY tested in anyone with a known iron overload ? IF one were to get some luminol the same luminol they use in CSI ?
One could buy get the substance / food / chelator to be tested and do a urine test on yourself and see if iron begins to show in your urine ?
"Luminol will also detect the small amounts of blood present in urine"
http://en.wikipedia.org/wiki/Luminol

Dori:
Explanation - translation, please :)
 :huh

ironjustice:
One figures out exactly what amount of luminol is required to illuminate the iron in your urine. THEN you get 'whatever' you are testing as an iron chelator and you eat it. You THEN test your urine FOR 'extra' iron that in theory you SHOULD be urinating out.
To put it plain and simple.  :wink

Dori:
I think I miss something. What is the logical of that?  What the use of knowing? :huh

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