Discussion Forums > Thalassemia Major

Beginning of a new phase of life

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maha:
Hi
My little boy will soon be starting scool. Next week we go in for his registration and academics starts from April. When do you tell the school about the thal status? Is it necessary to tell the school at the time of registration or do you let them know later when the need arises. Just the thought that he would be spending a good 5 hours away from home with no family member around is driving me bonkers, but I know I will get used to this with time. As for Hassan he is really excited about the whole thing.

maha

Zaini:
Salam Maha,

Congrats for your little boy's new starting  :biggrin don't worry he'll be fine Inshallah,about telling the school,when we registerd Z for school,there was a question in the registration form if your child had a medical condition or anything they should be careful about,and i obviously wrote about her thalassemia,so if i were you i would inform the school before hand,so that they'll know if anything goes wrong (God forbid),you know kids are kids ,sometimes they can get hurt while playing or during P.E,Its just a precaution,Z has been going to school since last six years and Alhumdulillah nothing has happened.

Hope this helps,:goodluck .

Zaini.

maha:
Hi Zaini
The registration form does not ask for details, but once the child is registered and starts going to school they do give a form to fill asking about any pre existing medical condition, allergies , immunisation etc..etc. but this is after almost a month. When we go in for registration we might not be alone, considering there are very few Indian schools the registeration queue is usually very long and everything is usually hurried with. But we could go and talk with the principal, but again does he have to know or only the teacher in charge needs to know.
Is it enough if I tell them he has a congenital condition called thalassemia because of which  he needs a blood tx every 4 weeks. ( sounds so simple).

maha

Manal:
Wawwww how time flies, he was just a baby..... congratulations Maha,

Personally, i informed the P.E. teacher that if my son requested rest during the class, he must have it at once (since he is having a low HB) and that if by any chance he got hit in the stomach, they should let me know at once and call me by phone.

My point is that i wanted to inform people who may be in situation that has to do with thal (like PE teacher and actually she didn't know what is thal so i told her it is just a kind of anemia).

I think that informing other teachers will not have any benefit to me, on the contrary they might treat him differently or with extra caution which is something i don't want

Good luck Maha, and keep us informed how things will go  :biggrin

manal

maha:
Hi Manal
This is exactly my dilemma. I don`t want Hassan to be treated with extra caution. Since we are expatriates here, and the schools have to work really hard to see that their license to operate is renewed without any hassles. If they feel that things could get serious if Hassan got hurt playing they might just not let Hassan play to avoid future complications. Moreover even if you tell someone about thal in detail theres still an element of doubt if they actually understood you.
When Hassan was diagnosed at the age of 1, he was not even standing leave aside walking or crawling. At that time a lot of people who were friends as well as those whom I had perhaps met someplace sometime were visiting us offering a lot of comfort, but the moment I was away from the hearing zone they would pity him, pity me and say things which was not very nice( only if they knew I had super sharp ears). But today the same people feel Hassan is cured and it was just a phase, when they see him bullying their kids. I feel its better this way cause the way they look at Hassan has changed completely.
Since in KG 1 the teacher in charge is always around the kids, she has to be informed. Sometimes I wish I was in Germany as the age to start school there is 7 and not 3 like India.

Maha

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