Discussion Forums > Thalassemia Major
opening up
nice friend:
i never feel bad to disclose that i m a thal .. n i think its better to tell once and face that once than keep trying to hide it aal the time... if people around u care's abt u they will help u in ur fight and other will stay neutral on this issue .. it will also help u seprating sincere friends and just friends.. thats wat i think .. decision is urs ,, its up to u and ur situation . but i never hesitated to disclose it .....
Umair
Lyanne:
Welcome! :hugfriend it's not like we are embarrass about it ( having thalassemia) but in my opinion Canadian_family is right ppl should know just in case. Not many understands it( the disorder) but they should at least aware there are such disorder.....
Waleed:
Well. i never concealed it and infact always felt it intersting telling others about my disease since my childhood. People are different and so am I. But I have a strong reason for that, im genetically a very open guy :rotfl and even tell things that i shouldnt but anyhow. My confession had always been beneficial for me...whether it college university or gym. Yes, people do feel pity for you as you said but as soon as they get to know you they really respect you and take you serious for the struggle you have been making through out your life against thalassemia. Poeple i've met or to whom i got the oppurtunity to aware them about thalassemia really took thals as the braves one. It had ALWAYS been helpful for me to tell my friends and teachers about my disease. My classmates and university fellows were almost all my donors for 4years BUT having said that they were that spirited people who would FORCIBLY donate me blood. Eesha dont get desperate by thinking that people would remain reserve or mean with you because you are a thal. I know many thal majors that are seen as mentors by other NORMAL people and they consult them for their personal life matters and in general. I know of two thal majors getting happily accepted their marriage proposals after telling their complete and clear history of thalassemia. Yes, right after you tell them of being a thal their eyes pop-up like an unwanted pop-up window, but as soon as you'll explain to them wisely about the disease and your lifestyle I bet you they will turn in your favour. I assure you to have better positive responses as you live in more open literate societies. We all have already been much affected by thalassemia in our lives, be it school playground, heavy crowd, adolescence and romantic life, activities demanding heavy stamina this that blah blah …BUT want to make sure that thalassemia shouldn’t be to make yourself hide what you actually are..not let it deprive you of very your personality and the very true nature you were born with. Yes I am thalassemic, but I am confident that I wont let it rule myself. For us thalassemia isn’t a disease but a way of life. Why conceal the disease or be shy about it when God made you that way? Why would you be any how discriminated on that note? Make them know ‘I am what I am..and if others have problem with me please stay away because I don’t want my precious time to be wasted on morons.’
Just be yourself. Don’t let thalassemia put you into identity crisis. I’m proud that I’ve met yet another thal like you who shared her inside out. Be confident what you are. Stand tall. Why conceal? Get the attitude -- Yes I’m thalassemic…but I’m not a bed ridden patient !
nice friend:
well said , Waleed .. i agree to u ....
eesha:
Thanks for all ur comments, but u kniow its difficult to explain people do see you differently when they knw about ur thal, work collegeues, school, people feel sorry for u, i dont want that i wnat to be normal. I dont thal to be my identiy, my ID is EESHA not THAL, thats why i hide away from it and then i feel normal .
Relatives that do know including family think u have thal and feel for me, they have seen me succeed in education andd work but in social side they think i cannot go fwd like marriage etc due to the condition, it frustrates mee how do educate our pakistani community.
Out of interest nay pakistani thals married here?
Navigation
[0] Message Index
[#] Next page
[*] Previous page
Go to full version