Discussion Forums > Thalassemia Major

Transfusion problems

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Andy Battaglia:
Exactly what Lena said. Don't add iron when blood isn't needed. The harm greatly outweighs the benefit.

maha:
Thankyou Lena and Andy
I suppose whatever happens, happens for the best. Now I am relieved as it was the right thing the doc did. Thankyou once again.

maha

maha:
On thursday we took Hassan for his tx. His hb was tested first and it was 10 (last week it was 11.2). The doc had a brief discussion with dunno whom and decided to transfuse 200cc instead of his usual 250cc. This past year his pre tx hb has been hovering around 10 (9.5- 10.8) and the doc never had any problem in transfusing him with 15ml/kg, can`t understand why this sudden onset of brain wave. Once he was admitted the CBC showed hb to be 9.2. I asked the head nurse to inform the doc so as to increase the blood volume to be transfused. He suggested 220cc. Now why is he doing this? Why couldn`t he give his full requirement of 250cc? Other times I wouldn`t have mind his little experiments but now since he has started going to school I am unnecessarily more worried.

maha

Lena:

Do not freak out, Maha. There is no need to worry.Do not face his school as something so strenuous, so as to change the blood taken because of this. Keep the same transfusion intervals and if you notice the hb drops considerably, then discuss it with the doctor. No need to worry, indeed. No need to let Hassan feel unsafe with this new change in his life.

Lena.

maha:
Hi Lena
That`s exactly why I am freaking out I don`t want to change anything but the doc is doing it unnecessarily. I didn`t argue nor question him this time, if Hassan can maintain his hb with less blood then its better for him and I would probably start praising his doc but what if its drops down to 8 because of this?

As for worrying about school its probably a habit and nothing thal related. I probably caused my hubby premature greying of hair when my daughter had started school :biggrin

thankyou Lena I know its best to wait and see how his hb behaves after 4 weeks and then sit down and discuss further if required. :hugfriend

maha

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