Discussion Forums > Thalassemia Major

Duration between 2 Blood bags

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ANI:
Thanks All , for your advise and suggestions. We had taken Ani to hospital on 5th and given him 1 bag of 170 ml and on 6th morning yet another bag od 170 ml ( thats normal size over here). Now he looks red and very energetic. I have discussed with my Doctrs regarding the Vitamin E supplements and L acrnitine. Vitamin E , he said OK to start but he did not have any idea on L carnitine and whether it should be given to thal patient. I think , I need to visit some higher centre in india for this.

Manal:
Hi ANI

You  can print these papers and show them to your doctor concerning the usage of L- carnitine in thal patients

Improvement of Cardiac Function in Thalassemia major Treated with L-Carnitine
http://content.karger.com/ProdukteDB/produkte.asp?Aktion=ShowAbstract&ArtikelNr=76522&Ausgabe=229926&ProduktNr=223829

Assessment of Puberty in Relation to L-carnitine and Hormonal Replacement Therapy in {beta}-thalassemic Patients. http://lib.bioinfo.pl/auth:El%20Beshlawy,A

Apoptosis in Thalassemia major Reduced by a Butyrate Derivative
http://content.karger.com/ProdukteDB/produkte.asp?Doi=87890


Diastolic Dysfunction and Pulmonary Hypertension in Sickle Cell Anemia: Is There a Role for L-Carnitine Treatment?http://content.karger.com/ProdukteDB/produkte.asp?Doi=89472

Pulmonary hypertension in beta-thalassemia major and the role of L-carnitine therapy.
http://www.ncbi.nlm.nih.gov/pubmed/19065439?dopt=Abstract


manal

ANI:
Thanks Manal , I will discuss with my Doc.

ANI:
Dear Maha and Manal
After 28 days when we took my son to hospital , his pre Trx  Hb was 10.2. I could not believe this. Only thing we did it that lat time we gave him 2 bags of 180 ml each and was on Vitamn E , as advised by you. It feels so good. This time we gave him 1 bag of 175 ml. Hope he sustains it to next 28 days. Bye

maha:
Hi ANI
I am glad your son`s` pre tx hb has improved. Now you should try and maintain it at that level. Since 175ml is less than your son`s actual blood requirement (actual would be 240ml appx) he may not be able to maintain the hb for 4 weeks. If you are comfortable with one bag at a time, I feel you should recheck his hb at 3 weeks and plan transfusion accordingly.

take care
maha

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