Discussion Forums > Thalassemia Major

Hb Levels

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Laura:
Hi!

Pleasance: I'm glad everything is going in a positive way. Hope it will continue this way.

Dore: The tickets are not sold out so if you want to come just tell me and we'll manage to find the way to catch them. About Exjade... I've been a little too out of the forum. What happened? Did you stop it?

Lots of kisses from the beach of Torrevieja (Alicante, Spain).

Yours,

Laura.

Laura:
Hello!

I talked to my doctor around 2 months ago and things have changed.

I currently have 3 bags every 3 weeks and my hb level before transfusion is between 9 and 9.5.

At the beggining we thought it was going to be the same as having 2 bags for 2 weeks but it really isn't.

When I had 2 bags I didn't feel good most of the time and I was always looking forward for the next transfusion. Nowadays, I feel very good at least 15 days and the rest of the period I'm just ok. In fact, last week I had to have my transfusion on Monday but I was ok so I phoned the hospital and I finally had the transfusion on Thursday so between on transfusion and the other there were 3 weeks and a half!!!
I couldn't believe that after having been feeling bad for around 10 years I was calling to say that I didn't need a transfusion.


I just wanted to thank you all because everything started changing because of your posts in this forum. You really helped me a lot.

Thanks for everything.

Kisses,

Laura.

Zaini:
Glad to hear it Laura, :hugfriend keeping you hb high doesn't only save you the discomfort but also saves your organs too :) .

Zaini.

Dori:
That is so great Laura! I am very happy for you!!!  :happydance    I am beyond the moon for you. I hope your doctor notice this also and I wish more people are able to experience this feeling!!!

It is almost a year since I am going in every 4 weeks for 2 bags. Due a vacation I had to put my tx a few days earlier. Although Despite that my hgb dropped a bit during those last pre-transfusion checks, but it stays witin appreciated values. I like the fact I have more time between transfusions and my energy level stays longer "normal". However I must work on that part as I tend to worn myself out within the first two or three weeks/ That is a little difficult as I feel so great. Especially during the four days after tanking up. It like I am flying. :) (even my sight seems to improve)

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