Discussion Forums > Announcements
TIF Conference 2011: who is going?
Syaida Lee:
Hi Dori,
My husband and I are both going. We are already registered. My 4th child Adel (3 1/2 yrs old) is Thal Major.
Dori:
It will be nice to meet each other. How's Adel's health? [transfusion scheme/chelation]
Syaida Lee:
Thanks for asking. Adel's made vast improvement after chelation (Exjade)/supplements following the members' suggestions in this website. I wonder why & how I got side tracked from managing his thalassemia? Honestly speaking, I only realised that he needed chelation (after approximatly 12 transfusions) when I read about it here. Can you imagine?? That was why I never pushed for chelation. Anyway, he's quite complex with chronic lungs/congenital heart disease all rolled into one. In our previous hospital, when I discussed Exjade, the doctors were reluctant to start due to his history of liver/renal infection after his heart surgeries plus they didn't have much experience dealing with Exjade then. When his spleen got so big, the drs thought he had storage disease (all the tests results were -ve), which we got side tracked again. Anyway, I'm so glad it all boils down just managing his thalassemia. It's been a long and arduous journey. Now, he's almost completely weaned off O2. We took him for an assessment in a special school in Singapore yesterday, which has OT/DT and we are so happy they said they're able to help him. So he will be starting school, which is amazing. Hope to see more of you guys in TIF Conference.
~Sweet*Petite~:
I hope you fully recover real soon Dori. :getwell
I'm hoping to come to the Conference with my brother, but I'm hesitating until I know for sure whether there are any cheaper hotels nearby. :pray
Any information would be much appreciated, especially considering that the Congress does not provide any new information, other than what's on the web/site!!!
Time is running out fast!!!
:impatient
Dori:
I have asked my Turkish friends for help. Somebody out here???? Well, I suggest you also send me a private message 'cause I do easily forget things.
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