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Thalassemia and Why We Need Your Help

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Andy Battaglia:
The cost has only risen, due to the US medical industry. The cost that is billed to insurance companies for Exjade alone approaches $100,000 annually. The US medical industry is for the most part, corrupt.

jsbhavsar:
Either of my mother's parents had beta thalassemia for sure. None of them were ever diagnosed of this nor anyone of them took folic acid or B12 or any tablet per se in their youth or old age. But, both my grandparents on my mother's side lived beyond age of 89-90.

My mother has been diagnosed beta thalassemia minor/trait since 1994 along with me. She never took folic acid daily or or monthly B12 for the first 23 years of the diagnosis. It is just that on my insistence from April-May this year I have asked her to minimum take Folic Acid 5mg per day and B12 shot in a month along with D3 supplement once per month.

Maintaining thalassemia is what is the real skill. I did not care for maintaining my thalassemia in the middle years from 1999 to 2017, I am paying heavily for it now. As my eyes are wide open due to hard lessons learnt in the last 7 months, I am now taking daily folic acid since Feb 2017 and taking monthly B12 shots, though it is too late I feel.

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