Discussion Forums > Thalassemia Major

life with thalassemia

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HbH:
 :hugfriend Thanks Zaini!  :)

Thank you for posting about your own experiences as a parent, too.  And I completely agree that it is about the individual - you, me, everyone else is an individual - so no two experiences or even situations and resulting advice would be the same.

Alexia:
I too want to thanK Hbh for your honest answer. As a mom of a recently diagnosed child, I want to hear it like it is and know what I need to prepare for.
Thank you

questions:
Thank you everyone for your thoughtful responses.  They are really helpful!

Madhavi:
HbH, what a good answer...it was an insight into your mind and life...I think questions would have found all the answers in that one!
All the best to you, HbH...hats off to you...and I am in awe of your strength, patience and writing as well!
Madhavi

HbH:
If I wasn't being honest, then I feel that I would be doing a disservice to both the parents of thal children (who have thal themselves) and the children with thal who have all worked so very hard to get to where they all have gotten to.

I very much admire the parents who have so much patience and love and compassion and courage for their children and who have put so much of their time and energy into caring for them and I very much admire the children who have done the same - caring both for themselves and their conditions and for other people.

Hard work should be rewarded and to me, that means being honest.

I am glad that my honesty is appreciated.

:)

:hugfriend

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