Discussion Forums > Thalassemia Major

aysam update

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Andy Battaglia:
Has Aysam's ferritin been high all along or was this a sudden increase. It doesn't seem to make any sense that he makes no progress with his iron load. I think you need to give Exjade a couple more months. If no progress is seen, IV desferal may be the only choice. This will reduce ferritin more quickly, so I would recommend it if his progress still does not show.

I would also agree with what Sharmin said. Give him vitamin E and IP6 if you can find it. This will give his heart some added protection.

Canadian_Family:

--- Quote from: aysam on September 25, 2010, 01:20:01 PM ---update aysams iron
6000 .....
they wont to do liver biobsy

--- End quote ---

I am trying to determine 6000 in which units, is it ug/l or something else. Can you talk to the doctors, what is the normal level of ferritin in thier standard. It does not make sense that Aysam is taking 750mg exjade for last one year and his ferritin is so high.

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