Discussion Forums > Thalassemia Major

Hb level raising and Im worried ;/

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jia:
How about children? Jia's Hb was 7.8 2 months ago pre transfusion, 8.5 last week pre transfusion. Mostly he is around 8.8 to 9.2. If given too much blood, he feels dizzy afterwards. Difficult to know the optimum level.

KHALIFA:
well well ,,,, Hi mariom or mariam hehehe i have this kind of experiance befor with my child Abdulwahab and when i discuse the case with PROFISIONAL Dr . (( off cours out side of kuwait))  :rotfl  i found out some time with sevral trans. of blood the spleen is like sponich absorbing blood ( if you are not spleenctomy) after few trans.it will be full and there is no way to absorbe blood ..so even the PROFESIONAL Dr squese it or some time the spleen free the absorb blood by it's self for this reason you found out your HB sometimes is high .. and am 100% sure a bout it and you know my son very well he didn't take any kind of vitamin before just blood and desferal ,, now he is taking nothing (( alhamdulilah))


                             khalifa
                        state of kuwait
 
                                       

maryo0m:
Hello everyone, Im gonna try to answer everyone lol sorry If I skipped anyone and I do apologize for my late reply I just had my BT yesterday and first day of uni for this course so yeah here goes nothing LOL,

Manar: Hi there :D Im glad to hear from you and thnx for your sweet explanation and example there so YAAAY i am happy and that maybe true because I recieve Iradiated blood, The bee pollen effect on me I would say it makes me feel a lil more energatic slightly refreshed plus I love the taste of the pills they taste like pure honey YUM.

Nana: Hello :> I dont know about others but in Kuwait Dr's wouldnt let you take blood if your level is above 10, For me I prefer to not let it drop below 10 as I've already said RBC's do carry oxygen through our body and our bones need oxygen, thals red blood cells arnt healthy enough to carry good amount of oxygen so when our HB is low the bone structure changes (eg. wider cheek bones etc...) all of this is because the bone surfac wants  oxygen there for it becomes wider, I like to keep my looks as healthy as my health so yeah I do keep my self on a tight scedual on when to have my BT.

TariQ: Hello there, I've been taking them for two months now.

Mr Khalifa: haha no comment, thanks so much for this usefull information and actually I do have my spleen so its not removed this may be a good reason , yes al7amdila inshallah your son dont need these stuff anymore.

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