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Turning Blood Red: The Fight for Life in Cooley's Anemia

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arthurbank:

I am an Emeritus Professor of Medicine at Columbia University and would like to make your members aware of the following events:

The first successful clinical trial of a patient with severe thalassemia has recently been published in the journal Nature on September 16th, 2010 (copy attached). A 21 year old man who required monthly blood transfusions has not required any transfusions for the past two years following the gene therapy procedure. I am a co-author on this paper.

My book, "Turning Blood Red: The Fight for Life in Cooley's Anemia," also describes the clinical trial. In addition, it contains sections on patients and families with the disease; research into the pathophysiology of the disease; and current and future approaches to thalassemia therapy (flyer attached). The book is available on Amazon; Barnes and Noble; Borders; and at World Scientific Publications. A sample chapter is free on the web (attached).

My website: arthurbank.com, describes advances in thalassemia.

I hope you can make your members aware of these activities.

Thank you.

Sharmin:
Dr. Bank,

Welcome!  It is such a pleasure to have you here.  I have a copy of your book and it does an amazing job helping people understand this disease.

I wish you the best in your research.  It was such a pleasure meeting you in New York last year - I can't believe it has already been a year!

Thank you for providing these links.  We all wish you and your group the best in finding a cure for thalassemia through gene therapy. 

Best,

Sharmin

Andy Battaglia:
Thank you Dr Bank. Our members have been quite excited to read recent news accounts about this publication. Thank you for the entire article. We have long run a poll on this site about what people think should be the top research priorities concerning thalassemia and a gene therapy cure has always been the top response. The continued progress in this field gives hope to all, and the question in the minds of everyone will be changing from "can this work?" to "when will this be reality?" It's a change of words and a change of mindset, but looking at one very important area, this should also lead to a change of funding opportunities for this and other gene therapy research to continue and thrive. The publicity generated by this article should prove to be a powerful tool for persuading potential investors that this is indeed the future.

Thank you and best wishes for the success of this endeavor. Patience will be required, and I hope this gives even more incentive to patients to take care of themselves today, because this will be a reality.

mohamed:
Hi Manal,
what do you thin about this? positive or negative?
I want to know your opinion.

Zaini:
Dr Bank,

Welcome and thank you for joining our site :) it is an honor to have you here.

Zaini.

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