Discussion Forums > Announcements

Meeting on gene therapy November 14 from 11:30 a.m. to 1:30 p.m

(1/7) > >>

7assan:
Written by Craig Butler     
Friday, 29 October 2010 13:21 
October 29, 2010 - TAG (Thalassemia Action Group), the patient-run support group of CAF, will be holding an informational meeting on gene therapy in thalassemia at Memorial Sloan-Kettering Cancer Center (MSKCC) in New York City on Sunday, November 14 from 11:30 a.m. to 1:30 p.m.

Entitled "Gene Therapy for Homozygous Beta Thalassemia - Overview and Update," the meeting will feature a presentation by Drs. Farid Boulad and Michel Sadelain of MSKCC, who have extensive knowledge of and experience in this area and are in the process of developing a thalassemia gene therapy trial themselves. 

The meeting is open to individuals with thalassemia and family members of individuals with thalassemia and will be held in room M107, 1275 York Avenue in New York City.  The entrance to the building is between 67th and 68th Streets; at the entrance, go up the escalator, make a U-turn and take the hallway leading to the cafeteria.  Room M107 is the last room on the left of that first part of the hallway.

 
Farid Boulad 
 
 Michel Sadelain
Farid Boulad, MD, is Medical Director, Pediatric Day Hospital at MSKCC with clinical expertise in Allogeneic and Autologous Bone Marrow and Peripheral Blood Stem Cell Transplantation.  Michel Sadelain, MD, PhD, is Director, Gene Transfer and Somatic Cell Engineering Facility at MSKCC with clinical expertise in Gene Transfer and Genetic Therapies. 

The flyer for this event can be downloaded by clicking here.  For more information and to RSVP please contact Rucha Shah at rshah.tag@gmail.comThis e-mail address is being protected from spambots. You need JavaScript enabled to view it   or Gargi Pahuja at gargitag@mac.comThis e-mail address is being protected from spambots. You need JavaScript enabled to view it . Please RSVP by November 7, 2010

http://cooleysanemia.net/index.php/tag/34-tag/updates/index.php?view=article&catid=1:latest-news&id=359:tag-schedules-informational-meeting-on-gene-therapy&tmpl=component&print=1&page=

Andy Battaglia:
I wish I could afford to fly down to NYC for this.

Sharmin:
Praying that all goes well and these trials start before the end of the year!

Sharmin

Andy Battaglia:
I have heard some very troubling news about the current status of this research. I cannot say much, but corporate greed has become a real factor in this process and threatens the very work that Sadelain has been involved with over the past twenty years.

I ask all to pray that this situation can be resolved and that this work is allowed to proceed as originally planned without unreasonable financial demands from Sloan Kettering. It would behoove SK to put patients above dollar signs.

7assan:
Yeah this is very troubling news , but wht about The results of clinical trials , bcz October is over .....?

Navigation

[0] Message Index

[#] Next page