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THALASSEMIA PATIENTS IN INDIA

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Sharmin:
A young thalassemia patient in India requires a pump.  Can someone please guide us so that Ankita can get a pump.  Chelation is essential to survival and well being in thalassemia - and this young lady has been requesting information about a pump for quite some time. 

Anyone having any information please post information as soon as possible. 

I hope that everyone has access to exjade (asunra, desirox), or L1 in the meantime if they are having difficulty obtaining desferal and associated supplies - but we must make sure that no one goes without chelation as the consequences can be devastating. 

Thank you all for your help,

Sharmin

Zaini:
I was guessing our members from India would be able to guide properly,but i googled it and found this,

http://www.thalassemicsindia.org/material.html

Plz contact them as they might be able to help you.

Zaini.

Sharmin:
Zaini,

Thank you so much.  I sent her some contacts from our list of treatment centers in India - but this should be even more helpful. 

I hope she is able to get the supplies she requires.

Thanks again,

Sharmin

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