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Thalassemia Patient Reflects on Milestone 60th Birthday

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kanika:

--- Quote from: Andy on April 06, 2011, 11:33:49 PM ---This deserves special attention. 60!

From CAF http://www.cooleysanemia.org/index.php?option=com_content&view=article&id=477%3Athalassemia-patient-reflects-on-milestone-60th-birthday&catid=1%3Alatest-news&Itemid=1

[/quote
he has truly ruled thal !!.. great source of boost up for me..
--- End quote ---

DiMattia:
So if 60 is a big deal I guess I'm at my mid-life crisis at 31.
What's the age range of thal interm these days?

Andy Battaglia:
It varies greatly for intermedias also, as intermedia covers a wide range of patients. With proper treatment in place, majors and intermedias should be able to live fairly long lives. Keep in mind that today's treatments will change greatly in the next two decades as new drugs and therapies are in various stages of development. Of particular interest to you should be the new generation of hemoglobin inducing drugs that should free most intermedia thals from transfusions.

Andy Battaglia:
I am very sad to announce that Carl passed away this week. He was a real inspiration to thals everywhere. If he could live to over 60 when he had no chelators available until adulthood, we should all know that it is possible for thals to live that long and even longer with the treatment available today.

RIP Carl.  :sorrow

Pratik:

--- Quote from: Andy on February 16, 2013, 04:56:31 PM ---I am very sad to announce that Carl passed away this week. He was a real inspiration to thals everywhere. If he could live to over 60 when he had no chelators available until adulthood, we should all know that it is possible for thals to live that long and even longer with the treatment available today.

RIP Carl.  :sorrow

--- End quote ---
May Carl RIP. It's very sad. And yes, he was the true inspiration and is still an inspiration for today's thals.

-P.

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