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Recruiting patient for Thalgen Finally! Good News about Gene Therapy Trials

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Canadian_Family:
The trial update as of November 7, 2013 is provided in the link below.

http://clinicaltrials.gov/ct2/show/study/NCT01639690

Hope to see some primary results in July 2014 as stated in the link, please see below:

Estimated Enrollment : 10
Study Start Date: July 2012
Estimated Study Completion Date: July 2014



 Estimated Primary Completion Date:

July 2014 (Final data collection date for primary outcome measure)

Sharmin:
Canadian Family,

Thank you for sharing.  Praying for good news for our children. 

Greetings from Western Canada :)

Canadian_Family:
Greetings back from Eastern Canada. However, I still hope Toronto Maple Leafs win over Calgary Flames on April 1, 2014.   :smiley



Sharmin:
ha ha Canadian Family -we'll have to see about that  :wink

Sharmin:
Has anyone heard anything new regarding the trials?  Hoping and praying that the first few patients are transfusion free - or at least close to being transfusion free....

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