Discussion Forums > Working Towards a Cure
Recruiting patient for Thalgen Finally! Good News about Gene Therapy Trials
Sharmin:
Andy,
Do we have any updates on the trials?
thanks,
Sharmin
Andy Battaglia:
Nothing new but I hope to learn more at the Philly conference at the end of this month.
Sharmin:
Thanks Andy,
I hope that more encouraging news will be relayed. Even small successes are important as they lead to the fine tuning that will bring about the bigger ones. I am very confident that this study will yield a complete and safe cure for thalassemia and sickle cell anemia.
Perhaps we can get the information from you in person as well will likely see you first week of July:)
Sharmin
elegantkunal:
Hi,
i have a dear friend of mine who is suffering from thallasaemia major.She is 25 years old and goes for blood transfusion at AIIMS(india) after every 21 days.Is there any chance she could be well treated, to cure her so that she could live a much healthier life.Which hospitals in US could provide her a better treatment so taht she could live a normal life.Looking at her no one could say she isa thal patient.Please help me in getting her a better life.
Thanks in advance,
Kunal
Sharmin:
Dear Kunal,
The most important thing that your friend can do at this time is to maintain good hemoglobin levels and low iron levels. This requires adherence to a good transfusion regimine, keeping hemoglobin level above 95 at all times, and keeping iron levels as though as possible - preferably below 1000 (the lower the better). We can help her in selecting a good chelator and chelation schedule.
We also recommend many supplements along with a good diet, rich in plant food sources. We recommend IP6, L-carnitine, vitamin D, vitamin e, zinc, calcium and magnesium as well as others to maintain good health. Drinking tea with meals is also very helpful
The comprehensive clinic in Oakland, Dr. Vichinisky is wonderful and would give you the best information.
Sharmin
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