Discussion Forums > Thalassemia Major
a 3 year old boy
qys81:
--- Quote from: aabha on July 22, 2011, 03:55:04 PM ---Ni Hao
my son just underwent a unrelated mismatched cord blood tranplant in april.His Hb today was 11.1
you too can approach Dr.Jaing at Chang Gung Memorial children's hospital,Linkou,Taiwan.
all the best.hope your friend's child is cured soon
love
aabha
--- End quote ---
Ni hao, aabha, are you from China or Taiwan?
I am so happy for you and your son.
Can you tell me some details about the cord blood transplant. You said it is unrelated and mismatched, I know with marrow transplant, there will be rejection even with 100% matched brothers or sisters, but I know nothing about cord blood.
How many casese did the doctor do, and how many were sucessful? How much aprox the cost?
Thanks again for your help
aabha:
Hello
I am from India,in taiwan for my son's treatment.
we got a 4/6 match for my son.Dr.Jaing has done more than 50 cases and has a success rate of 94%.all surviving cases are transfusion independent.he has done many 4/6 match transplants and also many double cord transplants for older children.the oldest he has treated is 14 yrs of age.the cost is about 50,000 usd.
please feel free to ask anything you want to know.it will make me very happy if your friend's son is cured.intrestingly there is no thal patient less than 12 yrs of age in Taiwan..Dr.Jaing has treated them all !
love
aabha
Madhavi:
Hi again, qys81!
If you are in Guangzhou or close enough, you could attend a post HSCT seminar to be held on the 29th-30th of this month at Nanfang Hotel, Nanfang Hospital.
My number is 13728097556.My qq is 1513358676.
There will be lectures conducted by Dr.Chunfu Li and his colleagues at about 9.30am in the hotel in the campus on the 30th.
Here is the agenda, in case you are interested,
造血干细胞移植术后聚会议程
29日所有参会的孩子入住南方大酒店
备注：入住时，以孩子为单位，在谭秘书处报到，拿房间
30日上午
早上6:40 叫早
7：00 准时孩子准时到达健康体检中心集合 谭秘书点名
7：00-9：00 南方医院体检中心 根据孩子的生长发育情况进行抽血、心肺、肝功肾功等各项检查 吴学东
9：00-9：20 早餐 –健康体检中心
（8：00前血样送到检验科，争取在10：00前出结果）
集体照：9：20在南方医院正门（孩子、家长、医护人员）
孩子：大会议室 主持 义工娟姐
9：20-13：00 南方大酒店小会议室 义工带领搞活动 讲故事等 25名义工
家长： 小会议室 会议主持人 吴学东
9：30-9：45 致辞 李春富
9：40-10：00 家长代表发言 朱锐然的爸爸
10:00—10:20 造血干细胞移植治疗地中海贫血经验总结及移植后去铁治疗 李春富
10:20---10:40 恩瑞格临床研究及援助项目介绍 何岳林
10：40-11：00 奥贝安可除铁 冯晓勤
11:00---13:00 对孩子检测结果做相应的评估 李春富、吴学东、、冯晓勤、何岳林
13：00 南方大酒店 午餐
Agenda of post HSCT meeting
July 29, 2011
Time Place
15:00-21:00 Check-in Nanfang Hotel
Time
7:00-9:00 Body check Medical Examination Center
Children should arrive at Medical Examination Center before 7:00
Blood sample should be delivered to the clinical laboratory before 8:00
9:00-9:10 Breakfast Medical Examination Center
9:10-9:20 Photos In front of out-patient Department
And then back to Nanfang Hotel ( 5th floor)
9:30-13:00 Children have fun with volunteers the bigger meeting room
9:30-11:00 Adults would be given lecture the smaller meeting room
(Lectures given by Pro Chunfu Li and so on)
11:00-13:00 Bodycheck result analysis (Q&A) the smaller meeting room
13:00 Lunch-Buffet (all together) Nanfang Hotel
Regards,
Madhavi
aus:
Hi. My son is turning 8 next week. He has been in line waiting for a bone marrow donour for about 2 years now. I don't think there is much of a chance for a match. I think when he is put in the register, they also consider cord blood. I am just not sure how safe bone marrow transplant is.
Madhavi:
Hi aus!
You could check with aabha about the registry they got lucky with....
Or you could check with the registries in China or Taiwan.
Regards,
Madhavi
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