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Sadelain's Research

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namitha:
Hi all,

I just found a link on MSKCC giving some updates about a possible gene therapy.

Enclosing the link here: http://www.mskcc.org/mskcc/html/63152.cfm

I hope something comes soooooooooooooooooooooooooooooon! Keeping my fingers crossed.

Regards,
Namitha

Ash:
Hi Namitha,

I have had the oppurtunity to speak to Dr. Sadelain in the hopes of getting the trial started in India first. As you might be aware even guinea pigs are being outsourced to India nowadays  :rotfl

I also met Dr. Sadelain in Dubai and he really is a wonderfull person, I really believe he will be sucessfull in his research and will definetly bring this cure to us thalassaemics. Unfortunately his research needs funding for the trial and thalassaemia is not a very big disease in the US and right now cancer gets all funds right now.

I tried my best to tie up his research with Reliance Life Sciences in Mumbai, however I was unsucessfull, I beleive in "try try agin tilll your successfull" so I am back on this case and maybe might have some good news in the next 2 months.

namitha:
Hi Ashish,

I've  heard a lot about you and read about you on various forums. I am so glad you are doing something to keep things going for us. I think Dr. Sadelain had come to Mumbai sometime. Please please do something and get me good news. I am a bad patient though I have thal inter. Very non-compliant  :mad. Let me know if I can do something. BTW I too had a fracture and a screw implant surgery and now I am back to normal. Hope you are feeling better now. What exactly happened if I may ask?

Take care and  :getwell

Regards,
Namitha

§ãJ¡Ð ساجد:
Hi Namitha,

He had explained what happened in this post

http://www.thalassemiapatientsandfriends.com/index.php?topic=332.msg2869#msg2869

Take care, Peace!

namitha:
Hi Ashish,

I just read what happened to you. I just thought you had a fracture!! God, You are really brave. Join the club of those who broke their femurs. I had a hairline crack at the neck of femur. I had a CRIF with three titanium screws. I have recoverd and back to normal. How is your recovery and rehab? Hope you will have some physio to make that femur strong. Are you on any bone strength medications besides the usual calcium stuff?

Glad to note that you have a fine sense of humour  :biggrin

Take care.

Namitha

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