Discussion Forums > Thalassemia Major

Unfortunate news

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Andy Battaglia:
Thanks for some very good advice, Emby.


--- Quote ---Please do not feel intimidated by the doctors......there is always a choice, and the final decision is with you.
--- End quote ---

Emby:
Oooops,...just noticed the date of this post :biggrin!!

Hope your little angel is in the best of health. I was just trying to touch someones life but you have soooo ''been there, done it'' already.....hope little Lauryn is truly in the best of health.

Emby  

ginacappo:
I just want to tell you, I wish they had the port when I was a baby. You are saving your precious gift a lot of pain and you are saving yourself a ton of anguish. They used to strap me down.  They also had to stick me in my ankle, my neck and lots of other odd places to try and get a vein.

I have had a port over 10yrs now and I love it and yes it can get infected but to me it is worth it. In the 10yrs that I have had my port it only got infected once and it was because my room mate had a cat and I had no idea that inhaling fumes from cat liter could lead to infection. I have had my 2nd port over 5yrs now and I stay away from cats.

I am just telling you from experience this surgery is minor and is so so worth it, in the end she will benefit from it...

Gina

eesha:
i think all children should get a port, i had one for like 10 years, and  at the end of the ports life i got infection thats onyly because port was getting too small for me, so i was treated and new port put in place of old one, new one stayed in about 8 years, but as i moved to adult hospital the nurses and doctors couldnt infuse in it as it moved a lot and they werent experinced so i had it removed and now just use veins, but this is very distressing.
It is so difficult to find a vein and wen they have to try 7 8 times i give up.

SO seriously portacath is a godsend for children i just wish i could have one now, do not make your children suffer pain unnecessarily. infection isnt that common. I never ever got an infection with my 2nd port, and neither with my first apart form the one time at hte end when it ahad to be removed, but compared to what i would have suffered it is nothing.

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