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Inducing Fetal Hemoglobin Production in Beta Thalassemia

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Kathy11:
Hi sajid and everyone.

Sajid
Good on you for trying, lets wait for a good outcome.A thousand miles walk commence with one step.
the word in my posting to christine was empathy  and justify not what I wrote.
  I would like to thank-you all for the respect you showed toward me,that is because my grammar is appauling and I don't edit my writting.I know my spelling is not good at times.Never once has anybody corected me.
You are all very kind and on my list you are all number one :bighug
Kathy

Hallu:
There's a group at NIH which is conducting a study on affect of raising Hb-F in thals. I participated in the study. They need more volunteers. If you are interested then please check a thread on this study in the announcement section.

Hydroxyurea treatment is exercised more in India (and in other countries) than in US.  I think earlier Hydroxyurea treatment was approved for sickle cell patients *only* and not for thals in US. Don't know if it is still the case.

--Hallu

Christine Mary:
kathy... you are so cute. i write like crap,and english was my major in high school.lol i dont have an excuse.

hallu, they are using hydroxyurea in majors? what kind of results did YOU have in the study? where is the study being conducted?
my 2 year old cousin,whos an intermedia,is on hydroxyurea and her hgb levels are increasing. i hope it continues.

Hallu:
Christine,

--- Quote from: Christine27 on October 04, 2006, 08:44:39 PM ---what kind of results did YOU have in the study? where is the study being conducted?
my 2 year old cousin,whos an intermedia,is on hydroxyurea and her hgb levels are increasing. i hope it continues.

--- End quote ---

This study is held at NIH, Maryland US and is not aimed at providing treatment. The scope of participation was to just give blood samples to the team.
I participated in the study and they shared few blood reports(CBC, electrophoeresis etc) with me. Thats it! But I talked to the folks and they told me that this study deals with studying affect of increased Hb-F in thals.

I didn't know that in US Hydroxyurea treatment is approved for thals. Thanks for providing the info.

--Hallu

Christine Mary:
hi guys.

i just wanted to let you know that we donated Lauryns cord blood to research. so who knows???
love,
christine

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