Discussion Forums > Thalassemia Major
Symptoms of congestive heart failure?
Pratik:
--- Quote from: Pratik on October 02, 2012, 07:45:34 PM ---Hi everybody.
I visited that family doc of mine (who also is a heart specialist) and got ECG (Electronic Cardiogram) done.
It was perfectly normal.
I will get T2* done shortly.
-P.
--- End quote ---
Any comments Andy about ECG being normal?
-P.
Andy Battaglia:
Both ECG and Echo can show normal heart function, but your heart can still be iron loaded. It's good that heart function is showing normal, but the iron load continues to be the needed focus. I feel you are on the right path.
Dharmesh:
--- Quote from: Andy on October 10, 2012, 01:49:28 PM ---Both ECG and Echo can show normal heart function, but your heart can still be iron loaded. It's good that heart function is showing normal, but the iron load continues to be the needed focus. I feel you are on the right path.
--- End quote ---
My Echo is normal and LVEF at 62% but Cardiac Iron Score is 7.8 which is poor. Inspite of having normal Echo i am having mild chest pain. So one can't solely depend on Echo.
Same thing on part of Liver, SGPT is 32 but the Hepatic Iron Score is 370 which is agaiin poor.
So, primary tests sometimes fails to indicate danger, if any.
Andy Battaglia:
Exactly right, Dharmesh. By the way, my friend, Nur had a T2* similar to yours. Desferal 7 days a week brought the score up to almost 14 after one year and over 20 after two years. Patience and compliance will pay off.
Dharmesh:
So Nur is the person whose score was quoted by you in reply of my earlier post of motivating me.
Let me wish Congratulations to Nur on achieving normal T2* :thumbsup :congrats
If Nur was chelating 7 days a week for 2 years then what was the daily dosage of Desferal 1g, 1.5g or 2g? Was it for 24 hours?
P.S. It was also happened to another friend whose Echo is normal, ECG rytham shows fluctuations and T2* is poor, So it happens to many. And Again primary test should not be relied upon in toto.
Navigation
[0] Message Index
[#] Next page
[*] Previous page
Go to full version