Discussion Forums > Thalassemia Major

Exjade

<< < (3/3)

Nina_Malli:
ok well im 32 yrs old

my ferritin is 5900 

ive been taking exjade 8 months now im 72 kg

and the doctor gave me to drink  4 x 500 gm  1x 250 gm 1x 150 gm

They told me to drink that every morning before haveing anything to eat and to drink it with orange juice so i did
but then i started getting like heart burns so they told me to start drinking it with apple juice
 heart burns are gone but i get like a stinging feeling in my stomach and sometimes i get a rash that realy icthy  but they told me its nothing serious
 to be honest alot of my friends (thal) that are on exjade have lots of problems and im a bit scared   i would like to go back to feriprox and desferal

u see i have no iron overload in the heart but i have too much in the liver and doctors says that exjade is the best for liver


is that true?

Andy Battaglia:
Exjade seems to remove liver iron better than Ferriprox, but combination desferal and Ferriprox works best. When starting Exjade, the rash can be minimized or avoided completely by starting with a dose of 1/3 to 1/2 the required dose. After two weeks, the dose can be raised. If you have stomach discomfort from Exjade, try splitting the dose into two and take half in the morn and half later in the day. In addition to less stomach discomfort, it actually chelates better because you get a true 24 hour chelation. This has been tried by dozens of members of thalpal and every single one has reported a drop in ferritin.

Navigation

[0] Message Index

[*] Previous page