Discussion Forums > Thalassemia Major

The Goal For Thalassemia Patients Today...

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Pratik:
That's just inositoll I believe.

Andy Battaglia:
Yes, inositol is not the same. IP6 is inositol hexophosphate or phytic acid.

b_dcruze:
Dear All,

I am a new member, my son Ryan is 2.5 years old and is having Beta Thal Major. He was doing preety good all this time and was maintaining a Hb level of 8.8, but about5 months back he had viral fever and since then his Hb level has fallen down to 7.2 and he is constantly keeping upto that. He is otherwise preety active and his growth is just okay. I want to be guided as to when is the requirement for transfusion?

I live in Kolkata, India and want to know about any care centre in the city where I can contact for the best advice. I want to give a normal life to my son and am ready to do all it takes.

Please guide me.

Regards
Benjamin Dcruze

Andy Battaglia:
Hi Benjamin,

Has your son transfused before?

b_dcruze:
Hi Andy,

My son has not been transfused till now, but last few months his Hb level has come down to 7.2, when is the correct time to transfuse.

Regards
Benjamin Dcruze

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