Discussion Forums > Thalassemia Major

The Goal For Thalassemia Patients Today...

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Andy Battaglia:
Benjamin,

The standard rule to begin transfusions is two consecutive Hb readings below 7. From what you have told us, your son is more likely a thal intermedia than major, but may be an intermedia that will eventually require transfusions.

b_dcruze:
Thanks for the support.

Regards

b_dcruze:
Hi All,

What are the test which I can do for my son to ensure that his liver, kidney and spleen are funtioning properly. The local doctor here does a check though by touching his stomach.

Regards
Benjamin

Himanshu Kumar:
The doctors try to feel the enlarged liver and spleen through physical examination of the abdomen. They press the abdomen and try to get a sense of how large the spleen or the liver has grown. One can feel the spleen when it is a little large. Some expertise is required to do a physical examination. Functioning of Kidney cannot be ascertained by physical examination of abdomen or the back.

aus:
Hi,

I would like to know more about developing antibody. Jia, my son developed an antibody 3 years ago and now has to have blood with Kell group antibody. This has limited his chances of getting blood easily. However, we haven't had any issues yet, thus far.

On another note, Jia is now playing badminton 3 times a week. I find that he is now capable of doing serious exercise. Should there be any limitation to how much sports he can do? He was just told to avoid contact sport as much as possible due to the difficulty in getting blood. Otherwise, the hospital hasn't advised us against sports at all.

Hooi

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