Discussion Forums > Thalassemia Major

The Goal For Thalassemia Patients Today...

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Andy Battaglia:
Hi Katerina,

IP6, Inositol hexaphosphate is from the B vitamin family. It is a mild iron chelator, it helps to protect against damage from iron and it is a powerful antioxidant. It can be purchased in capsule form from vitamin companies. I recommend it as a supplement to chelation drugs.

Katerina_Mall:
thank you Andy :)   i will try and find where i can purchase them from here in Greece

Lokkhi maa:

Thanks Sharmin for your nice post.All are manageable but how to manage if transfusion need after every 4 weeks to maintain hb 9.5 to 10?How my baby will suffer it?Its really very hard to accept.

How the hb will raise in future ?All of us need the solution...

shababhsiddique:

--- Quote from: Andy on November 12, 2012, 03:51:29 PM ---IP6 is an iron chelator and was the original reason I brought it to the attention of this group. It is also a powerful antioxidant that inhibits the actions of iron if the cells, preventing the oxidative damage that iron causes. Even in low iron thals, oxidation from hemolysis and unmatched alpha chains cause much damage, so antioxidants remain key even when the iron status is low. With the success of little A in keeping his pituitary normal, I feel we must re-emphasize the importance of high consumption of antioxidants like IP6 and vitamin E.

--- End quote ---

Is there any local importer in Bangladesh, Dhaka for this? Since its herbal i would love to try it out.

Khwahish:


Hi Andy

Why don't doctors tell us these things or recommend anti-oxidants to thal patients as a gold standard???!!

I am interested in doing some anti-oxidant so which is the one to go for - IP6, Vit E, Vit C? Which one has the greatest benefit?

What is your take on the benefits of Vit B complex for thal patients?

Thanks
Khwahish

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