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Thalassemia International Federation World Congress, Abu Dhabi, 20-23 Oct 2013

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manuelam:
Hello everyone!

The Thalassemia International Federation World Congress (TIF2013) incorporating the 13th International Conference on Thalassemia and Hemoglobinopathies  and the 15th TIF International Conference for Patients and Parents will take place in Abu Dhabi, the capital city of the United Arab Emirates from the 20th – 23rd October 2013.

Very soon you will be able to access more information on the dedicated website www.tif2013.org
Many interactive and educational sessions for the patients and their families are planned as part of the program as well as a fun filled social program to give a chance to all participants to network with one another and share their experiences in a relaxed atmosphere.

Abu Dhabi is a great city, very safe and with lots of fun things to do! There are direct flights into Abu Dhabi from most parts of the world and a wide choice of accommodation including quality budgeted hotels and apartments to suit all budgets.

I will be posting updates on the Congress regularly but please don't hesitate to write to me for any information.

Best Wishes!
Manuela

Andy Battaglia:
This conference will deny patients admission to scientific programs. TIF refuses to stand up for the rights of patients to have access to all information about their condition and its treatments, choosing instead a policy of arrogance that treats patients as little children. As a result, I cannot support this conference. I see almost no value to the conference and feel that TIF is basically running nothing more than a thinly disguised agenda of tourism.

I do not recommend that those actually interested in learning attend this conference, I certainly will not attend under these rules.

Pratik:

--- Quote from: Andy on April 13, 2013, 08:38:06 PM ---This conference will deny patients admission to scientific programs. TIF refuses to stand up for the rights of patients to have access to all information about their condition and its treatments, choosing instead a policy of arrogance that treats patients as little children. As a result, I cannot support this conference. I see almost no value to the conference and feel that TIF is basically running nothing more than a thinly disguised agenda of tourism.

I do not recommend that those actually interested in learning attend this conference, I certainly will not attend under these rules.

--- End quote ---
Certainly true.

After all all this research is for us patients, then why in world deny us from attending and learning?

Cannot recognize their objective whatsoever.

-P.

manuelam:
Dear Andy,
I have seen your reply to my earlier post only now - my apologies for not commenting earlier.
The Congress  includes a 3 full day program tailored to patients and parents with many informative sessions, case studies, workshops and plenty of opportunities to interact with leading experts. Also the first day of the congress (20 Oct) will be a joint session for healthcare professionals and patients and parents alike. The first objective of the congress is surely education with the program starting everyday from 8.30am to 6.00pm approx. In my earlier post I had referred to the many leisure activities available in Abu Dhabi as I understand the this is an international forum and I thought that not everyone may have been familiar with Abu Dhabi being a safe and welcoming destination.
The program is available on the website and I trust it covers many valuable topics to help patients and parents with their understanding and everyday management of thalassemia.
http://www.tif2013.org/conference/15th-tif-international-conference-for-patients-parents/
Hope you will join us next month but i appreciate if you feel differently.
Manuela

Andy Battaglia:
Manuela,

I am not a wealthy person and the costs to attend this conference are outrageous. In addition, unless you are in the medical profession, you will not be allowed to attend the scientific programs, making this conference nearly useless to me.

TIF is in no way in touch with the needs of the average thalassemic in poor countries and their choice of conference venues demonstrates this over and over. High priced resorts are inappropriate venues if you want to make the conferences affordable. Obviously, this has not been a concern of TIF.

Good luck with your conference. Let me know when TIF wants to sponsor a person who deals with individual thals on a daily basis and who actually makes a difference in the lives of thalassemics everywhere.

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