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Thalassemia International Federation World Congress, Abu Dhabi, 20-23 Oct 2013

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Himanshu Kumar:
I can transfer the fund through Western Union money transfer. Please mail the required details to me on himanshu_kr@hotmail.com. I shall do the needful. I am travelling abroad between 10th October to 5th November and hence request you to send details immediately. I shall try and transfer the money by Monday/Tuesday. Other possibility is money transfer through NEFT from the account. Let me know if that works for you.

Regards,

Pratik:
Himanshu,

You can pay through your credit card or MASTERCARD/VISA debit card too over PayPal.com. Its quick, secure and convenient. I use PP for all my shopping as well. Just in case you don't want to do all this manual efforts, also WU has high fees.

Regards,

-P.

zahra:
Hi Andy,
Do you think the parent part of the conference is of value for parents already in Abu dhabi?
Zahra

Andy Battaglia:
Zahra, I do feel that there is value for attendees to some of the presentations. For myself, these would hold little value (frankly, I could give many of these presentations myself), but for most people they do have some value, and you will get a chance to see some very good doctors speak and may get the chance to ask questions of them. I've sat in on patient and parent programs before and they don't teach me much and sometimes create frustration for me, due the parochial views of many of the people involved. However, there are things that can be learned about dealing with day to day life of thals, basic ideas about treatment, such as managing combination chelation and what regular tests should be done, that do have value. If I was there, I would go (mostly to interact with patients, parents and doctors).

zahra:
Hi,
I have been attending the TIF conference and have learnt some things but more than that it was very nice to meet some adult thals and hear their stories.
When a 43 year old thal tells you not to worry, that your son will have a life , that thals have lives and work and families and passions it means alot. So much more than what any doctor could say.

There were secretsries, real estate agents, yoga instructors,  microbiologists and even people who excelled and git into top universities.

I come away from this with renewed hope even though I have learned about many things that can and do go wrong that I didn't know before
Zahra

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