Discussion Forums > Thalassemia Major

Mom of beta Thal major baby girl

<< < (2/6) > >>

Pratik:

--- Quote from: aabha on December 30, 2012, 05:38:56 PM ---Prateek........I salute ur positive attitude.....it is an inspiration to others
good luck

--- End quote ---
Thank you Aabha.

It's very little that I could do, providing others an encouragement and the boost that they need. :)

-P.

Gurkiran:
My daughter's Hb has dropped from 10.1 to 8.6 in just 4 weeks. Doctors at Oakland are going to monitor her CBC in 15 days now.
Is there anything I can do to slow the drop in Hb so fast?
Please advise.
Thanks,
Gurkiran

Sharmin:
Gurkiran,

At this age, there isn't much you can do to slow down the rate of drop in her hemoglobin.  You may begin to notice some paleness in her skin and of her lips if her hemoglobin drops, continue to monitor her activity level and her feeding. 

My 14 year old son has thal major, her was diagnosed at age 3 months and he has been transfused since that time.  He is a very normal and active 14 year old boy with thalassemia being a very small part of his life.  We usually forget that he has thalassemia until transfusion day. 

As your daughter grows it will be important to give her a nutritious diet, vitamin supplements and keep her iron levels low.  The doctors at Oakland and thalpal can guide you through that.  Your daughter will grow up to be a healthy and very normal young lady, and she will live a long healthy life.  We are all here to support you along the way.

Best,

Sharmin

Princess'M':
Gurkiran, we are in the same boat. Our girl is 15 weeks old today. In November her hb was 9.5 and a month later it had dropped to 8.7 (she was 12 weeks at the time). Her next checkup is in two weeks. I salute your doc for being proactive and ordering the CBC every 2 weeks. Ours hasn't said anything yet about checking more frequently but after the next appt and seeing where the hb is, I may request this also. God bless our babies and give us strength to give them everything for the happiest and healthiest lives :)

Gurkiran:
Thanks Sharmin for your encouraging words. I am so glad to have come across thalpal.com. You guys are already proving to be such a source of courage. Thank you!
I am monitoring Hunar's feeding and sleep schedule. To make things a little bit more complicated, she was born 4 weeks early so sometimes I can't tell if she is sleeping so much because she is lethargic from anemia or because she is a preemie.
We are taking her for another blood draw this week. Will keep you all posted.

Navigation

[0] Message Index

[#] Next page

[*] Previous page