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Great News!!!!

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Christine Mary:
Hi Everyone!

We took Lauryn to the hospital today thinking she was getting her first tx (shes 2 months old today),and thankfully,she doesnt need one yet! :cloud9 :clap :yahoo :yahoo :yahoo :heartpink Her hemoglobin actually went up a point! Even before they poked her three times  :-\, the nurses doubted she'd need one,b/c she looks so fantastic.Her color is brilliant,her eyes are white as ever, and shes gained 1 lb in 2 1/2 weeks. The Dr. said at this rate,she will probably NOT need her tx until shes 4-6 months.
Unfortunatley,they did have to poke her 4 times. Twice in the arm,once in the ankle,and then finally in the heel.(Which from now on,seems like her best bet).
I asked the nurse( b/c they had such a hard time getting blood),if she would most likely need a Port-A-Cath.The nurse told us that her veins are "actually pretty good size" and most likely, SHE WILL NOT NEED ONE! The dr. wants to see Lauryn in 3 weeks, and even then doubts she will need anything done. Our prayers were answered today.I will take everyday I can w/o her getting tx'd. Thank you all so much for your warm wishes and prayers.  :hug
I hope Danielles appt is as rewarding as ours.I'm praying that she is not in any pain and they can fix her heart arrythmia ONCE AND FOR ALL! :getwell

Love,  :love
Christine

Bostonian_04:
Hi Christine,

Thanks great news indeed ..... I am so happy for you and Lauryn .... as long as she can stay without the transfusion, with her Hb above 9-10, the better. Also, it's great to know that she will not need the port-a-cath.

I am going into Children's tomorrow with my daughter, for possibly her third transfusion - and she is not yet three months old (she will be three months by the end of this week). I hope that she does not need the transfusion tomorrow and they can push it out by at least a week (and hopefully more) if her Hb is at a proper level (abobe 10). Let's see what tomorrow brings for my daughter :)

Take care ...

Bostonian

Bharat:
Christine

Very happy to hear the good news.  I hope Danielle is doing well too.

Warm Regards

Bharat

Andy Battaglia:
Christine,

That really is great news!  :biggrin   The Hb rising is such a relief. The longer transfusion can be put off, the better. Blood can be given earlier than chelation and the more you can shorten the headstart that iron buildup gets, the more the harmful effects of iron can be minimized. The fact that Lauryn's cousin is intermedia gives some hope that Lauryn's condition also won't be severe thal major, if it is major. I'm not certain that intermedia can be ruled out at this stage without DNA testing and even then it may not be conclusive. Time will tell, but right now, signs are encouraging.

Hopefully a port can be avoided. While there are benefits, there are also risks of infection and clotting. I think it's something to be avoided when possible. Sometimes the benefits outweigh the risks but if Lauryn has good veins it may never be an issue.

Bostonian,

Is your daughter on a folic acid supplement yet? I am also curious if they have talked to you about a comprehensive care plan yet. I think your daughter is in excellent hands at Boston Children's and will greatly benefit from their approach to care.

sahil:
Hey Hey Hey......Mrs.Christine Great News.....I am very very very happy for Lauryn and You. :yahoo

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