Discussion Forums > Thalassemia Major

Transfusing BabyI tomm. A bit worried

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BabyI:
And sorry to hear about your PrincessM. That's how I am with the feelings as well except I don't feel she eats enough even then. I can't wait until I can feed her without struggle. During the day it's very difficult. I thought maybe it was a baby stage but I guess not. I'll keep you posted on how things go. I am thankful she has this opportunity to be transfused as many don't unfortunately. But I know it's still difficult to see your baby going through it. I pray it goes very easy for her.

Princess'M':
When I hear things like this, it makes me quite aggravated. When I was in school I was REQUIRED at all times to state that I was in training. Years later, I train students now and that's the first conversation we have - introducing yourself. I find it interesting that phlebotomists are not allowed in transfusion areas (especially since you're at an excellence center). Nevertheless, yes please ask for a stat nurse; and this time be very clear and firm that you are not OK with a trainee or new grad poking your baby. If they give you a hard time or act stubborn about it; ask for a patient advocate. Your child's comfort depends on your emotional state; you'll be more relaxed if you can trust your healthcare team. I've treated pediatric cancer patients and the most important thing I learned was relaxed and happy parents=cooperative baby=smooth treatments. Ask for whatever you need to help you get through it :)

Pratik:
I can feel you about the pokes/needles. When I was small, even when my veins were seen sharp even with a closed eye and doctors failed, my mother and father used to get angry after the same incident being repeated several times. Then they abandoned that hospital and started transfusing me at my father's company's hospital. There were excellent doctors there who didn't used to poke me more than any once. Since then, I still get transfused there under the guidance of "same doctors" that used to transfuse me while I was young (baby). Now we are such that we've good relations and that they also come to our home once in a while as relatives.

Don't worry, things would get easier. If you find that hospital is not proper, it would be advisable to change or just be at another one the next time you transfuse and see where your child feels comfortable. :)

-P.

BabyI:
Hello everyone,

Today was the day and I am pleasantly happily that all went very well. I really didn't expect that and was prepared for the worse. What made it much easier for me was my doctor accommodated us very well. Where I get transfusion done is at our local hospital (I go to excellence once in a while for check ups). They have us a separate room since she is so small and I breastfeed her which helped a lot. I brought her own blanket, wraps and toys so she is comfortable and familiar with some surroundings. I was worried about the poking but because my doc let them know ahead of time that a pediatric stat nurse must do it only it went very smoothly. She did one poke, has to move needle around a little to get the vein and finally got it. I was so happy that she didn't have to suffer multiple pokes like she did when her blood was drawn. The lady wraped her hand and arm and I wraped my BabyI to sooth her and to keep her from moving her arm and accidentally pulling anything (didnt want her to go through any of it again). We were there at 12:30 and it took 2 hours for the blood to get started. This was unexpected but they said its a busy day. I was done at 6:20. BabyI did very well. I was happy about that. Ofcourse she was at times fussy but the pacifier helped. And she slept some. You know at times I would feel like this is ok. It's fine and we can do this. And seldomly I would feel overwhelmed that my baby is in need of blood and is laying there getting an IV. But I got over it and thanked God for all the blessings. I am so thankful she didn't get any negative reactions. It was hard preparing for this day but once you get there and everything is going smoothly, you adopt a positive attitude and be grateful she is able to get treatment and it such good circumstances. It may take me a few more times to get used to this and not let it affect me but I am happy that I could handle this in a positive way. Thanks to this forum and reading the stories, I was better able to deal with the situation. I hope my story gives someone else hope as well. I asked the nurse there what all the other patients were in there for; some for leukemia, sickle cell, cancer, and other ailments. Young and old were there and he said there was one other thalassimia patient that comes there every month, she was a girl when started and now is one of the doctors working there still coming for transfusion. Just goes to show how grateful we should be and how our kids have a bright future. One thing I wanted to point out that I think Sharmin mentioned in one of the posts; keep a positive attitude and make it a good day for your child because they feed off of you. Even my other older children can sense things. This helped alot because it was a day of happiness that she is getting treatment and with God's will can then get better.

BabyI's mom

Pratik:

--- Quote from: BabyI on January 19, 2013, 01:27:41 AM ---Hello everyone,

Today was the day and I am pleasantly happily that all went very well. I really didn't expect that and was prepared for the worse. What made it much easier for me was my doctor accommodated us very well. Where I get transfusion done is at our local hospital (I go to excellence once in a while for check ups). They have us a separate room since she is so small and I breastfeed her which helped a lot. I brought her own blanket, wraps and toys so she is comfortable and familiar with some surroundings. I was worried about the poking but because my doc let them know ahead of time that a pediatric stat nurse must do it only it went very smoothly. She did one poke, has to move needle around a little to get the vein and finally got it. I was so happy that she didn't have to suffer multiple pokes like she did when her blood was drawn. The lady wraped her hand and arm and I wraped my BabyI to sooth her and to keep her from moving her arm and accidentally pulling anything (didnt want her to go through any of it again). We were there at 12:30 and it took 2 hours for the blood to get started. This was unexpected but they said its a busy day. I was done at 6:20. BabyI did very well. I was happy about that. Ofcourse she was at times fussy but the pacifier helped. And she slept some. You know at times I would feel like this is ok. It's fine and we can do this. And seldomly I would feel overwhelmed that my baby is in need of blood and is laying there getting an IV. But I got over it and thanked God for all the blessings. I am so thankful she didn't get any negative reactions. It was hard preparing for this day but once you get there and everything is going smoothly, you adopt a positive attitude and be grateful she is able to get treatment and it such good circumstances. It may take me a few more times to get used to this and not let it affect me but I am happy that I could handle this in a positive way. Thanks to this forum and reading the stories, I was better able to deal with the situation. I hope my story gives someone else hope as well. I asked the nurse there what all the other patients were in there for; some for leukemia, sickle cell, cancer, and other ailments. Young and old were there and he said there was one other thalassimia patient that comes there every month, she was a girl when started and now is one of the doctors working there still coming for transfusion. Just goes to show how grateful we should be and how our kids have a bright future. One thing I wanted to point out that I think Sharmin mentioned in one of the posts; keep a positive attitude and make it a good day for your child because they feed off of you. Even my other older children can sense things. This helped alot because it was a day of happiness that she is getting treatment and with God's will can then get better.

BabyI's mom

--- End quote ---
Congratulations, nice to see that all went well. :)  :biggrin

Love to Baby I,

-P.

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