Discussion Forums > Thalassemia Major

adopting a child with Thal.

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Kayte:
Hi Nicole,
Yes, he is from China!  We have looked at his file, but of course some things are a bit confusing, because of the medical terminology.  Thank you so much for all the information you have provided.  I will be contacting
our insurance tomorrow, and now know the questions to ask.  Do many of the children from China have this?  Before looking at him, I had never heard of this.  It breaks my heart that he goes through this all alone.
Congratulations on your little girl!  I hope she comes home soon.  My husband and I will read your blog tonight.  Thal must not be so very daunting if many parents, you included, have gone back again.  Thanks again.

Thal-mom:
My 6 year old adopted son has Thal. Nicole is correct that most days we don't even think about Thal. For us the hardest part has been the lack of structure in his care. Our clinic has four Drs and each one says something different when we see them. I'm trying be become as educated as possible to make decisions for him. It hasn't been his treatments being a problem. And yes he goes to kindergarten full time. No one can tell there is anything different about him.

Jennifer

leonardo:
We have adopted a 5 y.o. child from China too! He's alfa thal with Constant Spring, then like a major...(a little bit).
really he's trasfused once every 60 days/75 days. it depend if he carrying home some illness from kindergarden....
Leonardo, he's a very playful child with high vitality. He goes swimpool two times a week and play with his brother every second....
Every trasfusion or Hb testing he "wins" a little model car and our home it's full!
Now leonardo is 6 y.o. and in september start school together brother (7 y.o.).....he learned "italiano" very quickly and when speaks all people  :rotfl....
LEonardo came from Guanzhou....and yours sons...where came from?

...my english ...:shy  :mouthshut

Thal-mom:
My son was adopted in November 2011. He met us in Guangzhou but is from Longgang SWI in Shenzhen City.

Kayte:
Hi All,

We want to thank all of you for the support and information you provided us.  Thanks especially to Nicole.  We decided we wanted to adopt this little boy and on Friday told our agency and we have been matched with him!  Now all we have to do is complete all paperwork and go and get him and bring him home.  He is also from Guongzhou.  We feel confident we can handle this, but are glad we have all of you to help through the tough times.
One less orphan in the world today, praise God!

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