Discussion Forums > Thalassemia Major

What would Oakland assess?

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Thal-mom:
My 6 year old son has a very high ferritin 5000-6000. Our Drs have mentioned us going to Oakland and they have mentioned adding Desferal to his Exjade. My son was adopted a year ago and we just get some basic bloodwork, transfusions and Exjade now. What might we expect if I could find a way to get to Oakland? Would someone there show us how to use Desferal? I was reading something about vitamin check? Seriously his vision and hearing were checked at his pediatrician's office. Not by specialists. What all might they check? How long has anyone had to stay there? Do any airlines offer discounted tickets? Oakland is a long way from Oklahoma.

Jennifer

Cari:
Hello - I would contact them. They will be able to guide you in the right direction and to the nearest thal center for immediate consultation.   I recently spoke with someone there and they were very helpful.

Thal-mom:
I've tried and left voice mail. Hopefully someone will return my call.

Jennifer

Andy Battaglia:
It might be helpful to contact Eileen at CAF.
800 522 7222 ext. 205

bomboi:
Hello Thal mom ,

I am currently going to Oakland for treatment . It is well worth it to make that travel to be seen and get a full check up . CHO is well trained and they know what to do and can answer all your questions . You don't need to stay long , just a couple days is good enough to get a baseline on what your son needs.

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