Discussion Forums > Thalassemia Major
Behavior & Eating Habits of Thal Major Child
b_dcruze:
Dear All,
My son of 2 years 9 months is a Thal Major, his hb level has been at 7.2+ for the last few months. Of late is absolutely refuses to eat anything and whenever we force him he brings it out. I am worried as he is really thin and weak compared to children of his age.
What should I do to ensure that he get all the proper nutrients he requires and his body growth is not hampered. Does this mean that we need to transfuse him, please guide me.
Regards
Ben.
Pratik:
7.2 Hb is very low!
Your pre-transfusion Hb goal should be above 9.5 or at least around it somewhere for him to grow normally.
Refusing to eat, spitting out are often well known symptoms that low Hb exhibits. Your child is having mood swings and is obviously not well as he lacks energy. Transfuse him ASAP.
-P.
Andy Battaglia:
I agree with Pratik, The appetite gets worse as the Hb drops. Today's protocol is to never allow the Hb to drop below the 9-9.5 range. There is no advantage to keeping a lower Hb and it creates many issues for the patients.
b_dcruze:
Hi Pratik & Andy,
Thanks for the advice, can you please guide me with some good doctor in Calcutta, WestBengal India.
Regards
Ben
b_dcruze:
I would also like to add that we have not transfused him even once, he has been keeping at 7.2 Hb level for the past 6 months. I really pray that I have not done any harm to him but not transfusing him all these while. I will consult the doctor and get him transfused this coming week itself. Are there any tests I can do to ensure that all is fine with him.
Moreover since this will be his first transfusion are there any specific precautions I nee d to take.
Please help.
Regards
Ben
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