Discussion Forums > Thalassemia Major

Planning to try Hydroxyurea. Have few questions.

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Andy Battaglia:
Hi Benjamin,

1) Yes, it is safe even for infants.
2) The side effects are usually mild and temporary. They may include nausea and a rash.
3) He should begin on low dose of 10 mg/kg to adjust the body to the drug. Once he is comfortable with the new drug, the dose can be raised to 15 mg/kg. 20 mg/kg should be the maximum dose.

I would suggest that wheatgrass tabs are taken with the drug.

b_dcruze:
Thanks Andy,

Is this a liquid?
Should I give it to him once a day?
Any specific name or brand of wheatgrass tablets I should use?
What is the wheatgrass dosage?

Thanks
Benjamin

Andy Battaglia:
Hydroxyurea is provided as capsules. It can be taken mixed with water or juice, but precautions have to be taken so there is no contact with skin. See the post at http://www.thalassemiapatientsandfriends.com/index.php/topic,4983.msg47523.html#msg47523
It is preferable that it be taken as a capsule. Your doctor should guide you in the drug's use.

Wheatgrass is available from several sources in India. I don't know anything about any specific brands. They're usually in 500 mg tabs. Take 1 to 2 daily.

Sushil:
you can use this site for wheatgrass.
http://www.goodlife.com/search.aspx?q=wheatgrass

FatherViaan:
HI,

My son is 1 year 7 months old and his HB remains between 7 to 8. He has been transfused twice and last transfusion 4 months back. Doctor is advising to start Hydroxyurea.

I am little concerned about side effects of taking hydroxyurea. Do you know who is taking it from long time?


Thanks.

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