Discussion Forums > Diet, Nutrition and Supplements
Nutritional Advice for Thal Minors
Andy Battaglia:
In general, the nutritional advice applies to both alpha and beta thal. The main difference is that attempts to raise fetal hemoglobin in alpha thal will not work, as there is a deficiency of alpha globin to combine with gamma globin to make HbF. Anything that is needed to build and maintain RBC's can help, especially folate, B12 and magnesium.
anaisaoco:
Hi Andy
I tried purchasing the multi vitamin you recommended in this post, but it has been discontinued.
https://www.allstarhealth.com/f/natures_way-alive_multivitamin_no_iron_added.htm
When trying to find an alternative, I ended up buying the version with added iron. :-\
https://www.amazon.co.uk/gp/product/B0009F3RO2/ref=od_aui_detailpages00?ie=UTF8&psc=1
A serving contains 18mg of Iron (as ferrous bisglycinate chelate). I attach the full nutritional information table.
Is this too much iron for me to take?
I am actually a beta thal intermedia, my hemoglobin is currently at 8.1, which is up from 6.5 a month ago when I miscarried. My ferritin is 437 ng/mL, iron serum 132 µg/dL and transferrin at 157 mg/dl with a saturation index of 60%.
I am currently taking 10mg daily of folic acid (perscribed by the doctor), a teaspoon of spirulina powder, B complex (100) and Maximised L-Glutathione 250mg from reading this forum and recollection of what I used to take as a teenager, but I was really hoping I could take a multi vitamin as well.
Thanks so much
Andy Battaglia:
This one looks very much the same, but with no added iron. https://www.amazon.co.uk/Natures-Way-Premium-Formula-Multi-Vitamin/dp/B0009F3ROC/ref=sr_1_1_s_it?s=drugstore&ie=UTF8&qid=1521154781&sr=1-1&keywords=nature%27s+way+multivitamin+no+iron
giggles:
Hi Andy
im so pleased to have found this wesbite dedicated to helping people with the thalassemia genetic disease.
A little about myself and my past, my name is jeff and i am 21 year old male living in Australia, a few years ago i had a general blood test that included a full blood examination, and the results suggested i had thalassemia traits, the doctor and i discussed about it and he said not to worry about it too much, he stated that it wont effect me, but he did say if he could a problem if i wanted to make a offspring, i would have to check if my partner was also a carrier of thalassemia, and i noted it and that was that.
So for as long as i remember ive always been feeling unenergetic, everytime i wake up i dont feel refreshed at all, i cant remember the last time i had good sleep. i dont have the motivation to achieve any goals or ambition, let alone if i have any at all.
I went back to the gp and dicussed about the lack of energy levels and restless sleeps, and ultimately we ended up talking about sleep apnea, and from there i went to go get a sleep study test done. Long story short, the test showed that i didnt sleep very well, and i stop breathing a few times during my sleep cycle, and from there i talked to the ENT specialist about it, and he examined me and suggested we remove my tonsils, uvulva, fix my deviated nose septum and make my tongue smaller. Well i was put on a waiting list and after a year, the surgery happened and i had the procedures done. Well honestly i feel the exact same way i did before the surgery, still feeling unenergetic and feeling shit after waking up from sleep. There were follow ups after the procedure like seeing how the recovey was going and doing another sleep study test. Ultimately the sleep study test was a fail, because i couldnt even get to sleep with all the machines equipped to myself and i only managed to sleep for 1 hour before the test was done. And that was that, i called them and told them i didnt want any more follow ups.
So recently the thought had came to mind about thalassemia, i didnt think much of it before until now, i started to do some research on the topic and hence i came across this website and now were here.
I dont know what type of thalasssemia i have, but i will post these results that are from 2016, and i have another blood test results coming in a fews days but i dont think that will change in my full blood examination
This test was done by dorevitch pathology
Full blood examination (references)
HB: 131 g/L (130-180)
PCV: 0.47 L/L (0.40-0.54)
RCC: 6.98 X1012/L (4.50-6.50)
MCV: 67 FL (80-96)
MCH: 19 PG (27-32)
MCHC: 279 g/L (320-360)
RDW: 21.7% (11.0-16.0)
b12, folate
serum folate : 28.4 nmol/L (> 9.0)
vitamin b12 (150-700)
iron studies:
ferritin: 247 u/L (20-300)
iron: 19 umol/L (10-30)
transferrin: 3.0 g/L (2.2-3.7)
transferrin sat: 25% (13-47)
Im going to buy the suggested vitamins and supplements you wrote in your post unless you say otherwise
folate 1-2mg daily (l-methlfolate as an alternative)
b complex 100
magnesium 250-500mg daily
vitamin c 500-1000mg daily
natural vitamin e d-tocopheral 400 iu daily, dont use dl-tocopheral
AVOID IRON
some people posted this on reddit
1g daily l carnitine taurine
creatine monohydrate
ashwaghada (ksm 66 extract)
anaisaoco:
Thanks Andy, that's the one I wanted to have ordered but I clearly did something wrong. In Portugal it's very hard to find multivitamin supplements with no added iron, so I resorted to ordering online.
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