Discussion Forums > Diet, Nutrition and Supplements

Nutritional Advice for Thal Minors

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giggles:
yo andy, i finally ordered all the vitamins and supplements i needed, ill post it up

i made sure to check the ingredients before buying, as i know some alternatives are better than others

Tinkerbellissima:
Hi Andy, Thank you for adding me. I am in awe that you have dedicated so much of your time to the Thalassemic community even though you are not a suffer yourself. My son is 20yrs old and has Thal Beta, he has been kind of okay most of his life. (Somethings are starting to make sense now) in recent months his energy levels have really dropped. His recent blood test came back that he was anemic, but not low in iron. Vit D levels have dropped from 90 last year to 60 this year. I have been reading a lot about the supplements you recommended and I wondered if you had come across Savestrols? They are essentially antioxidants in a high quantity derived from citrus extracts, blueberries, grape seed and blackberry powders. I wondered what your opinion on them was. Any advice for the chronic fatigue is welcome as we are new to this whole thing. Do Vitamin B12 injections work?
I have just started  giving him the following;
Coq10 100mg twice daily
Vitamin E 400iu x1 daily
Selenium 200ug x1 daily
Salvestrol shield x1 daily
Vitamin D3 1000iu x1 daily (should I increase this to raise levels back to 90?)
Vitamin C 600mg and Zinc 14mg lozenge x1 daily
Transdermal magnesium baths
How is this?
I appreciate any advice you can give. He has only just started on these supplements so not sure if they will make any difference yet to his fatigue and foggyness.

Hi Andy, Thank you for adding me. I am in awe that you have dedicated so much of your time to the Thalassemic community even though you are not a suffer yourself. My son is 20yrs old and has Thal Beta, he has been kind of okay most of his life. (Somethings are starting to make sense now) in recent months his energy levels have really dropped. His recent blood test came back that he was anemic, but not low in iron. Vit D levels have dropped from 90 last year to 60 this year. I have been reading a lot about the supplements you recommended and I wondered if you had come across Savestrols? They are essentially antioxidants in a high quantity derived from citrus extracts, blueberries, grape seed and blackberry powders. I wondered what your opinion on them was. Any advice for the chronic fatigue is welcome as we are new to this whole thing. Do Vitamin B12 injections work?
I have just started  giving him the following;
Coq10 100mg twice daily
Vitamin E 400iu x1 daily
Selenium 200ug x1 daily
Salvestrol shield x1 daily
Vitamin D3 1000iu x1 daily (should I increase this to raise levels back to 90?)
Vitamin C 600mg and Zinc 14mg lozenge x1 daily
Transdermal magnesium baths
How is this?
I appreciate any advice you can give. He has only just started on these supplements so not sure if they will make any difference yet to his fatigue and foggyness.

Thanks in advance

Andy Battaglia:
Hi Tinkerbellissima,

I don't know a lot about salvestrols, but they are related to resveratrol, which is known to help raise the hemoglobin level and reduce the amount of ineffective erythropoiesis (red blood cells that don't reach maturity) in the bone marrow, and that addresses the main two problems in thalassemia, so it is likely that salvestrols have some use in thals.
B-12 injections do work, but should be reserved for those who show no improvement from sublingual supplements. I know a thal minor who only feels okay when she has a B-12 injection.
If he felt better with higher D, he should try to get back up to that level.
The program looks good, but I would suggest getting a zinc supplement that also contains copper. They should be used together to prevent depletion of the one not taken. L-methylfolate may also be of use in building red blood cells.

dahlsi:
Hi Andy,

Thanks so much for the information you provided about the list of Vitamin and Mineral Supplementation for Thalassemia minor patients! I was already taking some of these, but am now taking closer to the full list. It has made a big difference, finally I can now get through a hectic work day without feeling tired or lethargic as a result :)

I have also started to use organic Wheatgrass powder in a juice that I make for myself and drink daily, which is helpful as well.

PS - I am so grateful that this website exists! It's so good to have a community of Thal patients who are going through similar symptoms to me, where we can share knowledge and support one another :) Keep up the great work!

Cheers, Dalia

Slade:
Just watch your kidney function fellow thals, its not difficult to overdo it with too many supplements and before long you may end up with a CKD, especially if you're predisposed to it.

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