Discussion Forums > Thalassemia Major
Poll: Blood Transfusions
Eponine:
I go every month, but at the way things are going, I might have to go more often. My pre-transfusion Hb, at it's best is about 9. I know it's probably way lower than any of you would accept. I feel find at 9 so I let it be.
Danielle:
Actually, I would love to have a 9 for my pretransfusion HgB. Except for recently, I had been going in with a 7 or 8 HbG after only 2 weeks, and I was getting two units each time. I don't know what's going on with my body recently, but my HbG has been higher, but I was in the 7's and 8's for years. I don't think a 9 is bad at all, especially after a whole month. That's awesome! :biggrin
Are you a Major, Eponine?
Poirot:
--- Quote from: Eponine on February 12, 2006, 01:34:04 PM ---My pre-transfusion Hb, at it's best is about 9. I know it's probably way lower than any of you would accept. I feel find at 9 so I let it be.
--- End quote ---
Not necessarily, :biggrin mine usually hovers between 8 and 9.5, too .... but, it is trade-off between the extra iron and some tiredness.
It's also got to do with body weight and I have put on some weight in the last few years, which has increased my "consumption" of blood. But, so far, I have resisted my doctor's advice of increasing the transfusion regime ... I go abt once in 15 days.
Poirot:
--- Quote from: Danielle on February 12, 2006, 01:41:20 PM ---I don't know what's going on with my body recently, but my HbG has been higher, but I was in the 7's and 8's for years.
--- End quote ---
Do you have your spleen? If yes, is it enlarged? If yes, then you have probable cause right out there. The spleen is eating up your RBCs.
Danielle:
Yes, I still have my spleen, and its enlarged. However, the past few months, my HgB has been higher than normal, which is odd to me. I haven't had a pre-transfusion HgB of 10.5 since I was in my teens, and that is what I went in with last week. :huh
I have been seeing doctors about my spleen, and we've been talking about removing it, but I want to make sure it's really necessary before its done. :sadyup
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