Discussion Forums > Thalassemia Major

Poll: Blood Transfusions

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Prince:
I go once a month

joanne:
My spleen is 20 cm
My HB is never higher than 9.8
and I dont get transfusions
Im 37 and had my son 15 months ago
I was very sick in  pregnancy my hb was 5.0 :wah

Bharat:
Hi Guys

My wife is Thal Intermedia. Danielle, her spleen was 17cm. She had the surgery in India. Recovered very well, BUT, it did not help her Hb level.   :(. Doctors said there are rare exceptions when it does not help the Hb level. Surgery was done through traditional open method. Anyone looking to have a splenectomy should try to have it done laproscopy. Also, the longer you wait, and the larger the spleen the less chances of having the spleen removed through laproscopy.

Its been five years since she had the splenectomy done and several blood transfusions in 5 years. She is now in the USA. Daily doses of antibiotics and folic acid and fosomax. No major infections. Doctors in USA disagree with daily doses of antibiotics. Her doctor in the USA is from England and states that doctors from both countries have their reasons but he advised to continue daily dose of antibiotics. 

Nice to see Thal moms posting their experiences. We are thinking of having a child and this site offers us hope. . Doctors have told us it will be a high risk pregnancy. I do not have the thal trait.
We are trying Wheatgrass and will keep this site posted of the results. Her Ferretin is 475 right now.
Thanks and see you later.
Bharat

 

joanne:
Dont worry I had a heathy thriving baby boy who is now 15 months old.
His father doesnt have thal...I was very tired with the pregnancy and very nauseous but I never threw up...The worse that happened is I had a small transfusion during my C section
The C section was not related toThalassemia.

farfora:
for me i took every 2 wks & sometimes every 3 wks ,& my Hb pre transfusion  about 8 -9

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