Discussion Forums > Thalassemia Major

BMT or blood transfusion

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little spiderman:
hello
I m new member. my younger son is 7 yrs. old and he is thalassemia major. He is  on regular blood transfusion and Exjade he is doing well . now they give us option for BMT as  his brother is perfect match . so  we met BMT team and they told us about lots of risks and also that after BMT there is 99% chances that he would be infertile............ we don't know what to do , as for BMT he fall in class 1 and have good chances of success and on other hand with transfusion he is doing well ........ can anybody help us that what are problems if don't go for BMT . plz reply me soon as I don't know what to do?
thanks

Andy Battaglia:
Some of your questions can be answered at http://www.curethalassemia.org/faq/

You should also be made aware that some doctors are using a low intensity chemo regimen that does not have as many side effects. I would suggest learning more about Dr Krishnamurti at Pittsburgh.

little spiderman:
hello Andy
Thank you for reply, actually we are in  Sick kid Hospital Toronto, Canada. We will talk about low intensity chemo regimen. he also has chronic eczema ........so is that dangerous during BMT Also I want to know that doctor only suggest me to give vitamin and calcium ,they never told me about zinc, folic acid or IP6 ..... so can I start them now and what dose . once again thank you so much for your reply
thanks

Canadian_Family:
Sick Kids Toronto is reputable and has a very high success ratio. I strongly believe you are in very good hands. The BMT team is excellent.

However, BMT is risky procedure. Personally if I will be in your situation, I would probably wait for stem cell therapy results conducted by Dr. Michel Sadelin, which are due next year or so, it is promising and less risky compared to BMT. Given your child is young and has lots of years to come. The blood transfusion facilities and the management level of thal major in sick kids Toronto is world class.

The decision is yours.

For stem cell therapy, read all about it in our forum (link provided)

http://www.thalassemiapatientsandfriends.com/index.php/topic,4046.0.html

Rajiv:
Hi Canadian family
I support your suggestion.  Best advice.  When we have time, we should wait.
Its better to wait instead of taking steps that may result in various risky and life threatening
illness.
regards,

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