Discussion Forums > Thalassemia Major

Toddler's First Transfusion

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JV:
Hi Princess, my daughter is 3 1/2 and goes every 3 weeks. Pre-Trans she is between a 9.2 and 10.1. About a year and a half ago (when she was 2) the Doctor wanted to try every 4 weeks. It only lasted about 2 transfusions because her count would drop below a 9 pre-trans. See what happens and best of luck!

James

Canadian_Family:
It is normal to adjust the duration of blood transfusion.

Generally, the gap is between 4-5 weeks. I say, more often it is 4 weeks.

Bostonian_04:
hello Princess 'M',
our daughter is almost 8 yrs old and she is on every 4th week Tx schedule with Pre-Tx Hgb level between 9 & 10. if the Pre-Tx HGb level is below 9 on consecutive months, then we change the Tx interval to every 3 weeks till we see that her Pre Tx Hgb level has returned to 9 and above.

With all the modern chelation and thalassemia care available in US, your daughter can do any or everything that she wants to. Just make sure to keep her Hgb above 9 and proper chelation when the time comes to chelate. If you want to talk more and get more information, please PM me.

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