Discussion Forums > Thalassemia Major

Gene Therepy

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souly:
Wishing all the patients on trial a very safe and success. I am thrilled to wait for the outcome.

Canadian_Family:
I saw the article and hope their trial is a success. The company is listed on NASDAQ, share is trading around $20, I am not sure if this company is in the business of making money or really thinking to benefit the thal patients. They expect to charge $450,000 (approx) for one treatment REALLY !!!!!!

$750MM in revenue first year, this does not sound right to me.

I question the way they project themselves.

Andy Battaglia:
I too, have many questions about Bluebird. My requests for information about their process resulted in nothing more than a few emails back and forth and zero information being shared. This is the complete opposite of what we have grown accustomed to from Dr Sadelain. I don't want to make judgments based on this, but transparency would be appreciated and we are not getting that from Bluebird.

Pratik:
Companies trying to make a buck is nothing new. Sadly, we all are "customers" to every product we use - be it Exjade or gene therapy - we will be charged too for it but that's okay. That's how this world works.

JV:
Completely agree with Andy about Bluebird...from personal experience as well. They also gave 25,000 to Cooley's Anemia this past year but refuse to answer specific questions.

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