Discussion Forums > Thalassemia Major

Need Help!

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Andy Battaglia:
Scotty is known as Aston Dialo in this group but is seldom active here anymore.

Hearing can return after ceasing a chelator, but if the other chelators also cause issues, there isn't much one can do. You use the chelator that works best for you while giving the minimum of side effects. In the end, patients need a wider range of chelators, with fewer side effects.

Andy Battaglia:
By the way, if you want to maintain privacy on Facebook, don't use your real name.

Nomad:
You know, what concerns me (and bother me @ the same time) is on the one hand my Ears, on the other hand my Liver. I think I will wait up till I have my T*2 test(the Cardiologist is on vacation at the momment) and then send you the numbers. Also about my Ferriscan, or squid. Whats the difference actually? And then I REALY HOPE that Ferriprox alone can work because im alergic on Desferal, Exjade makes me deaf and I dont want to have to choose between Liver-cancer or deafness. :wah
Its not easy to be me :dunno :wink

Himanshu Kumar:
Hi,

Do all iron chelators lead to partial deafness or loss of hearing? After how long does one start seeing symptoms of deafness?

Regards,
Himanshu

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