Discussion Forums > Thalassemia Major

Hardik

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hardik:
hello everyone here,i m new to this site.my 10 months baby is thal major.plz guide me do and donts for his well being. Till now he had got 6 transfusions .What should i give to him to maintain his iron level.?

His medicines include-1)-20drops of vitocofol(combination of vit b3,vit b12,folic acid)
2)-5 ml of calcium syrup
3)-10drops of vit d3

can i give him green tea at this age?
If yes how much can i give to him  :-\

is kalonji useful for him in anyway ?

what others supplemrnts can i give to him at this age for his best health conditions and plz tell me about IP6?

PLZ HELP ME.…

Bostonian_04:
welcome  to Thalpal, Hardik. My daughter is thal major. at that young age, we didnot give her anything apart from milk and homemade cereal, fruits etc. we gave vit D and a multivit without iron. That's about it.  when your son turns two, he will be on iron chelation so don't worry about iron chelation now. just try to build a healthy eatign habit for him.

Parin:
Hello Hardik,

Welcome to the forum.

Where are you from?

About the do and don't so don't think too much....grow your kid as a normal baby....Everything will be all right.maintain the HB above 9:50 and iron below 1000. As he is only 10 month so no worry for iron now...

Write here if you find any issue

Ashutosh

hardik:
Thank u for yours kind reply.....I m from Karnal(Haryana ,India).actually i m so worried about hardik as he is my first child but with such truth....and all around makes me afraid about his life and being a mother, its very difficult to handle every chaos.
plz tell me about IP6 and the right age to give him.Somewhere i read that cilantro(hara dhania) juice and green tea is very useful .
Is this true and is this right age to give him these .

Sushil:
Hi Hardik,

My daughter is also Thal Major and i am from your near state Delhi. please note that life is unpredictable childeren die at young age also without Thal major and people live in their sixty with Thal major also and there are member in this forum who are in their sixtys,So dont worry about your child life . I understand being a mother its difficult to handle but trust me I am saying by experience it is not that difficult. you can trust my word its just a blood disorder (like many others) which is going to be cure maximum in 10-12 years.

now regarding your child health please note that IP6 is not available in india hence you need to order this from US, puriton.com is site by which you can order. green tee, wheat grass juice etc are helpful but your child is too small for them hence what you need to take care of him now is only vitamin and calcium. so as you mentioned below what ever you are giving is fine from my perspective let him grow a bit (i.e. 2 years) and you can start rest of things.

Regards
Sushil Thakur

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