Discussion Forums > Thalassemia Major
Hardik
Pratik:
Hi,
Has your son undergone BMT or Dr. Ramanan's treatment?
hardik:
Hello All
No pratik till now i had not plan for BMT due to its cost
Andy ....will u plz tell me that.... What is hydroxy urea ...and can any one take it or we have to prescribed it.
Andy Battaglia:
Hydroxyurea is a drug with many uses. In thalassemia, it is used to try and raise the fetal hemoglobin. It does this by suppressing the bone marrow, which can activate the fetal Hb gene. It works for many patients, but should be taken with folate and B12. I also suggest taking wheatgrass tablets or powder. All of there will help the drug's ultimate effects.
jsbhavsar:
--- Quote from: Andy on July 24, 2017, 09:57:24 PM ---L-carnitine can be taken in low doses at age 3. L-carnitine adds nitric oxide, NO to the body. NO makes blood last longer and also helps protect against the long term problem of pulmonary hypertension that often affects thals as they get older.
See if you can find Metafolin as a folate supplement.
I don't typically advise multivitamins because they usually don't have enough of any vitamin in them.
See this link for supplement advise. A small child would take about 1/4 dose of most. http://www.thalassemiapatientsandfriends.com/index.php/topic,5190.msg48860.html#msg48860
Diet should be nutritious foods, with plenty of fresh fruits and vegetables. Avoid junk food as much as possible.
--- End quote ---
In my 30th September evaluation at the Bone Marrow Transplant and research center I heard exactly the same words the two doctors (Hematologist and Interventional Cardiologist) speaking about my health and some words getting uttered as Nitric Oxide levels and something. My file has a noting by the Hematologist to keep checking for pulmonary hypertension every 3 years.
But nothing was given to me to increase my NO levels.
What drugs and foods increase NO levels in our body?
Andy Battaglia:
I suggest about 10000-2000 mg L-carnitine or L-arginine daily to help fix NO in the body. Search online for lists for foods that boost nitric oxide levels. Here's an example, https://articles.mercola.com/sites/articles/archive/2017/07/17/heart-healthy-foods.aspx
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