Discussion Forums > Thalassemia Major

Hardik

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hardik:
Thank u Andy....thank u very much......u r really just like a bright sunshine behind the dark clouds of Thal.....ur guidance are of great help to all of us....as we normally face the situation where docs in reputed firms don't care of us anyway and take us as granted or just a money making subject....thanks for ur kind concern....

Scrolling the site ,I just came across a word Carao and Ip6...I read it ...plz enlight more about it.....

My worry is that now a days my baby is feeling very tired all the day long...he plays very little ...his ferritin is 1720 and I think he had pain in his joints....As his BT had been done on this 18 only ....and doc didn't attend on Sat so I missed the chance to start his chelatin right now...and next meeting is on 13...so plz guide what should I give him right now to enhance his energy level....I know its a stupid thing to ask u...but being a mother...I had found ur advice's more useful .....

Thanks again
Neha

Lokkhi maa:

Dear Hardik,

You may give your baby wheatgrass tablet or powder to enhance energy level.. :heartpink

Syeda:
For lokhi maa: that sounds like great news about your child's iron levels after 9 transfusions! It sounds like the green tea is working!!

Andy Battaglia:
Neha, at what level of Hb is the child transfused? It may be that the Hb is being kept too low. I don't think carao had much effect on thals who tried it. Wheatgrass is a better option.

hardik:
He is transfused at 9. his present weight is 10.3kg so 200ml blood is transfused .

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