Discussion Forums > Thalassemia Major
Hardik
Bostonian_04:
Hardik,
sometimes stomach upsets or viral fevers etc can cause increase in these numbers. In my opinion, if your child does not have fever, you can continue the chelation medicine. May be give a break with the supplements for now...after all he is just 2 years old. Have him drink lots of water and give him nutritious food with veggies/greens and protein. check the numbers again after a month and decide on next steps then.
Andy Battaglia:
Make sure the child stay well hydrated. This is very important for all using chelators. but much more important for young children. I also suggest you get milk thistle capsules for the child. Milk thistle herb is therapeutic for the liver and can help maintain normal liver function when using chelators. It is also useful for the pancreas. We have heard several reports of milk thistle being the solution to high liver function tests.
The supplements are fine to take normally, but with young children, it's okay to take on alternate days. Take some supplements one day and the rest the next. It's easier on the stomach. Any time there is stomach discomfort, stop IP6 until the problem rectifies. I wouldn't add anything new until the liver function is normal. As Bostonian said, these levels can be affected by illness, so a one time measurement can be an exception. If this was to continue with use of the chelator, you may have to re-examine the choice of chelators. I think it's likely that this will get under control as the child's body gets more used to the chelator. If the chelator is stopped currently, try giving it every other day for a week or two and then get tested again. get tested early in the day, as activity raises these levels. You will get a truer test early in the day. If the tests are close to normal, daily use of the chelator can be started. You might also find that taking Desirox with food improves these test results.
hardik:
Thanks Bostonion 04 and Andy for ur replies .....
I had one question that hba2 is considered as a main thing for checking Thal major.....but.....what if the child has normal hba2 and high hbf and thus is diagnose as Thal major as the case with hardik....
His two times tested report says
Hba2-->2%
Hbf-->93%
Hba-->7%
Can raising more hbf helps him in getting off from transfusions...
Andy Battaglia:
HbA2 is more useful for diagnosing thal minor. It's value is limited in diagnosing more severe types of thal.
This child is not beta zero major, as there would be no HbA present. Raising HbF can reduce transfusion requirements. This is the goal with hydroxyurea and wheatgrass therapy. Wheatgrass can help but is not enough by itself to eliminate transfusion.
hardik:
Hello Everyone.....
As i observed that whenever i gave ip6 to hardik his sgot and sgpt start increasing.Earlier when his sgot /sgpt reaches 160/427 ..in Jan 2016...... I stopped desirox and ip6 for a month to get the values back to normal which took around a month ....and then firstly i started only desirox ,....not ip6. ...values remain same as last tested and then i slowly add on ip6 on alternate days ....his sgpt and sgot again increased to 160/143 .....and he had swelled eyes .....everytime...when liver values changed.
.. .....Is it possible that intake of IP6(510 mg) by 2 and half child weighing 12 kg shows adverse effects on SGOT and SGPT.....and increases it beyond original values by 3-4 times.
And one more question is:---
My. Mother 's blood always remain at 6(I think she is Thal minor and I m inherited from her but she refused to test) and is not increasing from past 2 years .She is around 55-60 of age....and now her health is refusing to favour her....and cause severe pain in all joints especially knee joints,weight is increasing day by day instead of cycling ,exercise and walking ...
Plz guide about hardik and what to do to increase her blood levels ....and energy too...can she take IP6......plz tell
What to do for her good health
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