Discussion Forums > Thalassemia Major

Hardik

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hardik:

--- Quote from: hardik on May 15, 2016, 02:07:30 PM ---Hello Everyone.....

As i observed that whenever i gave ip6 to hardik his sgot and sgpt start increasing.Earlier when his sgot /sgpt reaches 160/427 ..in Jan 2016...... I stopped desirox and ip6 for a month to get the values back to normal which took around a month ....and then firstly i started only desirox ,....not ip6. ...values remain same as last tested and then i slowly add on ip6 on alternate days ....his sgpt and sgot again increased to 160/143 .....and he had swelled eyes .....everytime...when liver values changed.

.. .....Is it possible that intake of IP6(510 mg) by 2 and half child weighing 12 kg shows adverse effects on SGOT and SGPT.....and increases it beyond original values by 3-4 times.

And one more question is:---

My. Mother 's blood always remain at 6(I think she is Thal minor and I m inherited from her but she refused to test) and is not increasing from past 2 years .She is around 55-60 of age....and now her health is refusing to favour her....and cause severe pain in all joints especially knee joints,weight is increasing day by day instead of cycling ,exercise and walking ...

Plz guide about hardik and what to do to increase her blood levels ....and energy too...can she take IP6......plz tell
What to do for her good health

--- End quote ---

Plz reply

Waleed:
Hardik,

Increased LFT's would be more likely because of desirox than ip6. You can see by dividing desirox dose if it helps. Also, for such a young child with not so high ferritin, it really needs to be seen whether desirox dose is absolute necessary at this point or not. Usually, there is some room to pause chelation for a while in very young children. You should include wheatgrass in her diet as it may prove very beneficial in your case. I would be focusing more on ip6 and wheatgrass at this point than forcing desirox to work.

As for your mother, low Hb do cause joint pains, wheatgrass can increase energy levels when Hb is low. Anyone can take ip6 so there's nothing wrong in that. Calcium and Vitamin D tests can also be done to see if there are deficiencies, as they are very common in women as they age.

hardik:
Hello waheed
Thanks for reply
But his(weighing 12 kg) ferritin is very high 2131....and I m givving him only 250mg right now ....due to high liver vàlues and thats on alternate dates....feeding him with plenty of water......and Wheatgrass also.......even then these values making me so much worried for his health ......plz guide

Andy Battaglia:
Have you tried milk thistle?

Dharmesh:
It is the general observation that Desirox brand increases the LFTs more in thals than other brands

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