Discussion Forums > Working Towards a Cure
luspatercept-increased-hemoglobin-decreased-transfusion-requirement-in-beta-thal
Bostonian_04:
Sharmin,
Thank you for posting it.
Andy,
Thank you for your encouraging comments. Looks like so many different treatment options are opening up for Thalassemia. It is all good news and something to look forward to.
Andy Battaglia:
Bostonian and Sharmin, I don't know if you remember, but Dr Piga was at the NYC conference we attended. He told me there that his favorite part of the conferences is outside the sessions, when he can meet the patients and families. He truly loves the patients and always has their best interests at heart. I have great faith in his abilities.
Parin:
Thank you Andy and others.
Hoping soon all thalassemia major will get something to cheer....
All the very Best to doctors and researcher
CrazyPharm:
Has anyone contacted Acceleron or Dr. Piga to inquire when they plan to start phase III studies? They are starting phase 2 extention studies at the moment which are slated to complete in 2017 :huh according to their clinical trials.gov page:
https://www.clinicaltrials.gov/ct2/show/NCT02268409
If anyone has any contact info. for Dr, Piga I would be grateful to have it.
Thanks!
Canadian_Family:
Competition is wonderful news for Thalassemia patients. Just 10 years ago, there was very little hope for the cure. Now companies are pumping money into research to find cure for thalassemia. Nobody wants to loose the money, so they feed on competition, finding best cure at cheaper rates......
So far we know there are atleast three main streams in this respect.
BlueBird
MSKCC
Acceleron
We know there are others as well. Good Luck people, see what future holds for us in next 5 years.....I am optimistic.
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